Fibro Community UK

30/10/2026

I came across this article about Miranda Hart talking about her experience of living with ME/CFS and thought I’d share it.

I think it’s really important that people with a platform speak openly about their experiences, particularly when it comes to conditions that are still so misunderstood.

Having lived with Chronic Fatigue Syndrome and Fibromyalgia for over 10 years, I can certainly relate to some of what she’s describing.

I think unless you’ve experienced it yourself, it’s difficult to understand just how much these conditions can affect every aspect of your life.

Hopefully, the more people talk about it, the more awareness and understanding there will be.

I’d be interested to hear what everyone else thinks, particularly those of you also living with ME/CFS 💜

Miranda Hart has shared an emotional and deeply personal update with fans about her ongoing battle with ME.

The much-loved comedian and actress has spoken openly about the debilitating fatigue she has experienced over the years. In a new video, she admitted she was having a difficult day physically, which brought back memories of the years she spent struggling with the illness.

Here is what she said:

"Hello to you from my cosy armchair, my cosy hoodie and my cosy cup of tea. I'm having a day where my body feels pretty fatigued, and it's reminding me of the days, months, years when it was consistently and acutely fatigued. And whenever my body reminds me of those times, I'm reminded of those times.

My heart goes out to any fellow ME sufferers or similar conditions. So I'm just sending huge love today. I hope you feel seen and understood by somebody.

I know there is still an awful long way to go, and people still think ME is a behavioural condition. Do I think it is so? No, I do not. I got a tick-borne infection quite badly when I was a teenager, which ended up being Lyme disease and then other infections, and that is what, as far as I understand, causes ME. So it is a physical, biological illness and needs to be recognised and treated as so.

So, yeah, this is me metaphorically being by your bedside and saying, I see you, I understand, I love you, and just wish you all the love and luck in the world. And here's to recovery if we can. So yes."

It's a touching message from someone who has brought so much laughter to British television, and a reminder that serious illnesses aren't always visible to others.

29/10/2026

💜 World Stroke Day – 29th October 💜

As today is World Stroke Day, I thought it was worth sharing a little reminder about the signs to look out for.

I’m sure most of us have heard of FAST, but how many of us would actually recognise the signs of a stroke if it happened to someone around us?

It’s one of those things we hope we’ll never have to deal with, but knowing what to look out for really could make all the difference.

I’ve included the FAST signs in the graphic, along with a few other symptoms worth being aware of.

And remember, if you suspect a stroke, even if the symptoms disappear, call 999.

LESS ALONE. MORE UNDERSTOOD.

25/10/2026

💜 Sunday – Continuing the Conversation 💜

This week in our private group, we’re talking about our experiences with healthcare professionals.

Do we feel listened to, believed and supported?

From struggling to get a diagnosis, to having new symptoms put down to fibromyalgia without further investigation, or being offered more medication without looking at the bigger picture.

I know from my own experience how frustrating this can be, but I also know there are some fantastic healthcare professionals out there who really do make a difference.

I’d love to hear about both the good and the bad experiences.

💜 If you’d like to share your experience, you’re welcome to comment below or come and join the conversation in our private Facebook group, Fibro Community UK, where we can talk more openly and support one another.

👉 https://facebook.com/groups/fibrocommunityuk/

LESS ALONE. MORE UNDERSTOOD.

page: Fibro Community UK
Private Facebook Group: Fibro Community UK
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23/10/2026

💜Thank you for being part of this community💜

Every comment, every message and every shared experience reminds someone that they’re not facing Fibromyalgia alone.

I hope you all have the best weekend possible x

22/10/2026

💜 Hot Water Bottle Safety 💜

National Burns Awareness Day was last week, and I came across some information that I thought was worth sharing.

I don’t know about anyone else, but I use at least one, sometimes two, hot water bottles every single day to help manage my pain.

I knew hot water bottles needed replacing, and I’d seen the little date wheel on them before, but if I’m being completely honest, I’d been reading it wrong..

The general recommendation is to replace them every 2–3 years, as the rubber can deteriorate over time.

Considering how many of us rely on heat to help manage our pain, I thought this was worth sharing.

LESS ALONE. MORE UNDERSTOOD.

20/10/2026

💜 Fibro Facts Tuesday – The Importance of Connection

Living with fibromyalgia can sometimes feel incredibly lonely, especially when the people around you don’t fully understand what you’re going through.

Sometimes just being able to talk to someone who genuinely gets it can make such a difference.

That’s exactly why I created Fibro Community UK. A place for real people, real conversations and genuine support.

Our private Facebook group offers a more private, supportive space where members can feel comfortable having honest conversations, sharing experiences and supporting each other through the good days and the difficult ones.

Whether you’ve been living with fibromyalgia for years, are newly diagnosed or are still looking for answers, you’re welcome to join us.

💜 Join our private Facebook group:
www.facebook.com/groups/fibrocommunityuk

LESS ALONE. MORE UNDERSTOOD. 💜

19/10/2026

💜 A little update about joining Fibro Community UK 💜

It’s lovely to see more people wanting to join our private group, and everyone who’s genuinely looking for support, understanding and conversation is very welcome!

I’ve noticed that some membership requests are coming through without all the joining questions being answered or without agreeing to the group rules.

I just wanted to explain that these are there for a reason. I’m trying to build a safe, private community where people feel comfortable sharing their experiences.

If you’ve requested to join but haven’t been accepted, please don’t think you’re not welcome! It may simply be because you haven’t answered all the questions or agreed to the group rules.

Please feel free to request to join again, making sure you answer all the questions and agree to the group rules.

I’ve also sent a few private messages, but because we’re not Facebook friends, they may have gone into your Message Requests or Spam folder, so please have a little check.

Thank you to everyone who’s joined so far and is helping to make this a genuine, supportive community 💜

Join our private group here:
https://www.facebook.com/groups/fibrocommunityuk

Fibro Community UK

LESS ALONE. MORE UNDERSTOOD 💜

19/10/2026

💜 Invisible Disabilities Week 💜

How many of us have heard “But you don’t look sick” or “You look fine to me”?

And sometimes people don’t even have to say anything. You can see it in the way they look at you, almost as though you know exactly what they’re thinking.

I think that’s one of the hardest things about living with an invisible illness. Constantly feeling like you have to explain yourself or justify how you’re feeling, simply because people can’t physically see what’s wrong.

Just because someone looks okay doesn’t mean they are.

I’m interested to know, what’s the one comment you’ve heard, or assumption someone’s made about you, that’s really stuck with you?

I’d love to hear your experiences 💜

Fibro Community UK
Public page: Fibro Community UK
Private Facebook Group: Fibro Community UK
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LESS ALONE. MORE UNDERSTOOD.

18/10/2026

Continuing the Conversation… 💜

How has fibromyalgia changed you? Not just physically, but your outlook, your priorities or the way you see life?

It’s something we’re chatting about today over in our private Facebook group, Fibro Community UK.

Come and join the conversation. We’d love to hear your thoughts 💜

“Come and join the conversation in our private group 💜 https://www.facebook.com/groups/fibrocommunityuk”⁠

LESS ALONE. MORE UNDERSTOOD.

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