11/01/2025
Welcome all to this page to raise awareness and funds for our little Lily - Lily’s Light ✨
Sean and Emily’s daughter Lilian was devastatingly diagnosed with MLD (Metachromatic Leukodystrophy) late in 2024. MLD is a very rare genetic disorder that damages the white matter of the brain and spinal cord. It is a progressive, degenerative disease that will impact far more than a localised area or her characteristics. This disorder will take away her ability to move, to speak, to see, to eat and to swallow. Worse yet, this disorder will slowly take Lily away.
Please join our journey as we walk 190 miles from Bournemouth to Tottenham, including all the Premier League grounds between, in 8 days from 29.03.2025
Link in bio to donate 🙏🏼
