ARFID Awareness UK

09/06/2026

UCL are seeking adults in the UK with ARFID (diagnosed or suspected) and a BMI of over 18.5 to trial a new 8-session guided self-help treatment. For more information and to sign up go to https://qualtrics.ucl.ac.uk/jfe/form/SV_aafIT6FLyEOUpEy. For any questions, contact the researchers on [email protected]

03/06/2026

The incredible Lucy is doing a HUGE on Sunday 5th July 2026 for ARFID Awareness Day in memory of her son Alfie Anthony 🛩️🪂🧡

Lucy and everyone at continue to honour Alfie’s memory by taking on various challenges to raise awareness and donations for ARFID.

If you would like to support Lucy’s big jump, click this link: https://www.justgiving.com/page/lucy-morrison-3?utm_medium=FR&utm_source=CL

03/06/2026

'Jump For ARFID' is an awareness campaign created for to make Avoidant/Restrictive Food Intake Disorder more visible and push for better understanding.

By sharing photos and videos of ourselves jumping, we create a powerful visual
symbol of support, understanding and action. Every jump helps start conversations
about a misunderstood eating disorder that affects children and adults around the
world.

To take part, post a photo of a jump on your social media on ARFID Awareness Day on Sunday 5th July 2026 - and don't forget to use the hashtag and tag us so we can share! You can find more information about the campaign and taking part here: https://tr.ee/vOyFtOAR2M or email Jaimie at [email protected]

Together, we can leap past stigma and build greater understanding of ARFID 🩵

02/06/2026

Mark your calendars! It's next month on Sunday 5th July 2026 🩵

Here are some ideas on how you can get involved this year, and keep your eyes peeled for information on our campaign!

01/06/2026

It’s National Volunteers’ Week 🩵

At ARFID Awareness UK we are incredibly grateful for every single person who gives their time, energy, and passion to support our mission. Your dedication helps us raise awareness, improve understanding, and ensure that those affected by ARFID feel seen, heard, and supported.

A message from James, our Chair of Trustees:�“We would like to extend our heartfelt thanks to all of our volunteers. Your commitment and compassion are at the very core of what we do. Whether you are sharing your experiences, supporting others, or helping us grow as an organisation, your contributions make a real and lasting difference for the ARFID community. We are deeply appreciative of everything you do.”

A message from Andrew, our CEO:�“I want to personally thank each of our volunteers for the vital role you play in driving our mission forward. Your lived experiences, insights, and dedication are invaluable. I am especially excited to continue developing our Experts by Experience group, which will place volunteers with lived experience of ARFID at the forefront of our work. Together we can create greater awareness, foster understanding, and make meaningful change.”

To all our volunteers, thank you! We couldn’t do this without you.

21/05/2026

Exciting news! AAUK and Univa are offering 50 families free access to a self-help app designed to support children and young people with ARFID over 12 months.

We’re looking for families with children aged 3-18 to take part.

Participants will:
• Use the app regularly over a 12-month period
• Share feedback on their experience
• Join monthly online support groups with AAUK

Spaces are limited, but we’ll keep applications for future opportunities (more to come!)

If this sounds right for your family, apply here:

Thank you for your interest in taking part in this exciting partnership between ARFID Awareness UK (AAUK) and Univa. We are offering 50 families free access to a self-help app designed to aid self-help and support children and young people with ARFID over a 12-month period. Participants will be aske...

20/05/2026

Currently on the train home from Edinburgh after representing ARFID Awareness UK alongside Alfie’s spectrum navigating Autism and ARFID together.

All your comments on my post yesterday were heard today, so thank you all.

Today highlighted the importance of lived experience voices, so please share your stories and experiences as the more we speak up the better the future will be.

14/05/2026

We’re looking for one person from Derbyshire or the surrounding area to represent our organisation and take part in an upcoming ARFID roundtable being run by First Steps ED.

The roundtable will bring together service users, parents and carers from across the country to discuss what needs to improve in ARFID care, from diagnosis and waiting times to the support available once people are in the system. The findings will contribute to a joint report being published on ARFID Awareness Day 2026.

We would particularly welcome:
👉 A service user with lived experience of ARFID
👉 A parent or carer of someone with ARFID

The roundtable will take place in person in Derby in mid-June, although a virtual option may be available if travel is difficult.

If you are interested in representing us and sharing your experiences to help shape future conversations around ARFID care, please get in touch with Jaimie via email: [email protected]

08/05/2026

📣 Adults with ARFID wanted for a focus group opportunity

Researchers from University College London (UCL) are looking for up to 7 adults with lived experience of ARFID to take part in a one-hour focus group next Friday evening (15th May)

The project is aiming to develop a guided self-help intervention for adults with ARFID, and the researchers are keen to ensure that their recruitment materials are engaging, accessible, and sensitive to the experiences of the ARFID community.

They are looking for adults with lived experience who would be willing to share their thoughts and feedback on draft materials in a supportive discussion setting. Accessibility is important to the team, and they are open to different ways of gathering feedback where needed.

The researchers will be making a donation to ARFID Awareness UK in recognition of the group’s support.

If you are interested in taking part, please contact our CEO at [email protected] or 07857793885

30/04/2026

ARFID Awareness UK's place in the London Marathon 2027 is open for applications!

We have been able to secure a place in the charity ballot to have one runner for AAUK in the to raise awareness and funds for Avoidant/Restrictive Food Intake Disorder (ARFID) 🏃‍♂️

This is your chance to take part in one of the biggest fundraising events in the world to give a voice to and help us continue to push for better support and understanding 🩵

If you're up for the challenge, you can submit your application here: https://forms.gle/MZBL7CqBaoYdXZF69

The deadline for submitting this form is 31st May at 10pm (BST). Applications will be reviewed in early June.

If you have any questions, you can email us at [email protected]