Scottish Huntington's Association Youth Service

Scottish Huntington’s Association is a Scottish charity created in 1989 to meet the needs of families living with Huntington’s disease (HD), a severe genetic degenerative, neurological disorder.

03/07/2025

Are you a parent whose partner has Huntington’s disease? Lancaster University is conducting a study to better understand the experiences of non-affected parents who are raising children while caring for a partner with Huntington’s disease.

The research, led by Trainee Clinical Psychologist Elizabeth Furr, explores how caregiving and parenting roles change over time - with the goal of improving future psychological support for families.

You can take part if:

• You have at least one child over 16
• Your partner with Huntington’s lived at home with your children (under 21) for at least 3 years while experiencing symptoms

💬 One interview (60–90 minutes) via Microsoft Teams or phone
📅 Recruiting until December 2025

Your voice could help shape future care and support for families affected by Huntington’s disease.

👉 To find out more or register interest, email: [email protected]

💻 https://hdscotland.org/about-us/research/

Address

Glasgow

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