19/06/2026
I was talking to someone the other day whose Mum has been diagnosed with dementia and she said they would keep her in her own home as long as possible 'as that's where she feels most safe'.
I confess I felt exactly the same about Dad (he had Lewy Body dementia) but gradually, I noticed he became worried about strangers he felt he could 'see' in his garden:
❓Why were they there?
🤔 Were they up to no good?
❓Did I know who they were?
He was going to have to go and confront them ...
So, off he'd go into the garden - not a good idea, as another Lewy Body trait for him was a Parkinsonian gait, so he shuffled on the uneven paths 🫣 ... and of course, the strangers would have 'gone' by the time he got there.
And I began to realise (with SPECAL's guidance) that he felt increasingly stressed by the need to guard his property and his possessions, all the time being very aware he wasn’t able to 'keep on top of things.'
Fast forward to the nursing home (where he felt that I was staying, too, like a hotel) and he wasn't at all perturbed by the people he saw outside in the gardens, as they were not his responsibility any longer.
He felt happy to sit with his paper and a cup of coffee while they got on with whatever they needed to do.
For me, that changed what I felt 'home' actually meant to him, from 'his house' to 'somewhere he feels secure, where everything makes sense.’