12/10/2026
We have been asked to advertise this research study for Kings College
If anyone is interested please do contact them.
Thank you!
INFORMATION SHEET FOR PARTICIPANTS
Ethical Clearance Reference Number: HR-25/26-54799
YOU WILL BE GIVEN A COPY OF THIS INFORMATION SHEET
Title of project
Communicating about medicine to reduce the risk of breast cancer.
Invitation Paragraph
You are being invited to take part in a research study conducted by staff and students at King's College London. Before you participate, it is important that you understand why this study is being done and what it involves. Please take some time to read the following information carefully. If you have any questions, feel free to contact us at [email protected]
What is the purpose of the project?
The aim of this study is to understand your perceptions of tamoxifen as a treatment to prevent breast cancer, and the language used to communicate about the treatment. We are seeking individuals with different levels of risk of developing breast cancer in the future. We hope to better understand these perceptions and inform how health professionals communicate about this treatment going forward
Why have I been invited to take part?
You have been invited to participate if you are over the age of 18 and are biologically female. We are seeking individuals from various backgrounds and experiences, including different levels of risk of developing breast cancer in the future.
This study is about treatment to prevent breast cancer from developing in the future. If you have been diagnosed with breast cancer or ovarian cancer currently or in the past, you are not eligible to take part in this study.
What will happen if I take part?
You will be asked to complete a short questionnaire, taking 15-20 minutes, about the following:
- Demographic questions (For example, asking you to confirm your age, s*x, and ethnic background)
- Questions about family or genetic history of breast cancer.
- General beliefs and attitudes towards medicine. For example, questions include whether medication worries you, and your views on how doctors use medication, among other questions.
- You will be given some information about a treatment that is used to reduce the risk of developing breast cancer and asked to share your perception and attitudes on it. For example, questions will ask you how clear the information was, as well as asking you to rate your confidence and effectiveness of this treatment.
Do I have to take part?
Your participation is completely voluntary. You can decide whether to take part in this study, and if you change your mind at any point during the survey, you can stop before submitting your response. Choosing not to take part will not disadvantage you in any way. Once you have submitted the survey, your response will be anonymous and cannot be withdrawn as we will be unable to identify your set of responses.
What are the possible risks of taking part?
This study will involve reading about a medical treatment to prevent breast cancer; therefore, if this is a sensitive topic to you, you can withdraw from the survey at any point.
If you are affected in any way by this research, you are able to contact the research team via email – [email protected]
Alternatively, you can seek free support from the following organisations:
Breast Cancer Now
https://breastcancernow.org/about-breast-cancer/treatment/hormone-endocrine-therapy/tamoxifen
Mind
https://www.mind.org.uk/information-support/guides-to-support-and-services/
Hub of Hope
https://hubofhope.co.uk/
What are the possible benefits of taking part?
While there are no direct benefits to taking part in this study, you will be contributing to building our understanding of how to communicate about cancer preventing treatments. This will help us inform healthcare professionals on how to effectively communicate with women who are at high risk of breast cancer and may be offered this treatment.
Are there any incentives for taking part?
Once you have completed the survey, you will have the option of entering a prize draw to win one of ten £25 Amazon vouchers. We are aiming to recruit 1000 people and so your chance of winning is 1 in 100.
Data handling and confidentiality
Your data will be processed under the terms of UK data protection law (including the UK General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018). King’s College London has a responsibility to keep information collected about you safe and secure, and to ensure the integrity of research data. Specialist teams within King’s College London continually assess and ensure that data is held in the most appropriate and secure way.
Your responses will remain confidential, and all research data will be anonymous and stored securely. The results of this study will not identify any individual responses, and no identifiable information will be published.
Only the researchers involved in this study at King's College London will have access to your anonymous data via a password-protected file on a King's Shared OneDrive. This will be kept in accordance with data protection laws, and data will be securely discarded at the end of this study.
You will be asked if you consent to having your anonymous data stored for potential secondary data analyses in future research. Data will be stored in the same way, and this is an entirely optional choice for all participants. Not consenting to store your data for future studies will not disadvantage you in any way.
At the end of the survey, you will be given the option to enter your contact details if you wish to enter into the prize draw, receive a summary of the results of this study or receive information about other similar research in the future. This is entirely voluntary, and you do not need to provide your contact information. This will be via a separate survey where you can enter your name and email address. These surveys will not be linked, and it will not be possible for the researchers to associate your name and email address with your survey responses. Your contact details will be stored securely on a password protected file held on King’s College London Shared OneDrive, in accordance with UK data protection law. Only the research team will have access to your contact details. Your contact details will be stored until 31st December 2029, after which they will be permanently deleted. You can withdraw permission to store your contact details for future research at any time by emailing [email protected]
Data Protection Statement
If you would like more information about how your data will be processed under the terms of UK data protection laws, please visit the link below: https://www.kcl.ac.uk/research/support/research-ethics/kings-college-london-statement-on-use-of-personal-data-in-research
What if I change my mind about taking part?
You are free to stop completing the survey at any point, without having to give a reason. If you stop completing the survey before you submit your responses, your data will not be saved. Withdrawing from the project will not affect you in any way. Once you have submitted your survey responses, withdrawal will not be possible as your saved responses will be anonymous, and we will be unable to identify your set of responses.
What will happen to the results of the project?
The results of the project will be summarised in BSc Psychology and MSc Health Psychology research project reports. The data will also be published in a peer reviewed journal or presented at an academic conference. The results may also be shared in training materials or grant applications to relevant funding bodies. All data are anonymous, and it will not be possible to identify you in any reports.
Who should I contact for further information?
If you have any questions or require more information about this project, please contact me using the following contact details:
[email protected]
What if I have further questions, or if something goes wrong?
If this project has harmed you in any way or if you wish to make a complaint about the conduct of the project you can contact King's College London using the details below for further advice and information:
Dr Lyndsay Hughes
Reader in Health Psychology
[email protected]
IOPPN - 16 De Crespigny Park, London SE5 8AB
The Chair, Health Faculties Research Ethics Subcommittee, [email protected].
Thank you for reading this information sheet and for considering taking part in this research.
King's College London statement on the use of personal data for research purposes.
