National Institute for Health and Care Research funded, Cambridge Rare Disease Network & PLRH co-created, Cambridge University Hospitals NHS Foundation Trust sponsored The Rare Disease Research Network (RDRN for short) is a new inclusive online hub facilitating patient-initiated rare disease research. This project is NIHR funded, co-created by the rare disease community, CamRARE & the Patient Led
Research Hub (PLRH). TURNING RESEARCH ON ITS HEAD
This new platform will officially launch at on Saturday 23 November and will be a safe, supportive, collaborative networking space for any interested in rare disease research. A place for patients and patient organisations to share their research priorities and for researchers, HCPs, companies and funders to see what's important to patients and support patient-initiated research ideas. Many of the 10,000+ rare diseases get very little attention and research is usually researcher-led. We're turning research on its head to give patient's research ideas the visibility they need and to support researcher's in being more efficient and successful by collaborating with patients early. Join to network, benefit the match-making feature to find others interested in research that interests you, provide or benefit from mentoring support, use the patient community-created research resources, build research teams and take research forward in a more efficient and collaborative way to ensure the best outcomes for all.
