Cure4George and George's Journey

Cure4George and George's Journey Raising awareness of Duchenne Muscular Dystrophy through George’s journey, and fundraising for medical requirements, treatments, and a cure

Sharing the story of our son George, who was diagnosed with Duchenne Muscular Dystrophy (DMD) in November 2016. We aim to create awareness of his condition, fundraise and give support to others.

17/06/2026

Porsche Muscle Dream applications are now open. An incredible experience & the age range for muscle dreams has been lifted to 35! (Minimum age 10 years). Such a brilliant day 🚘 .

😁 Staying in the Premiership for next season!! ⚽️ 💪🥳⚽️ Will definitely be celebrating tonight at the WFA National Awards...
06/06/2026

😁 Staying in the Premiership for next season!! ⚽️ 💪🥳⚽️ Will definitely be celebrating tonight at the WFA National Awards night at Leicester King Power Stadium ⚽️💪⚽️

A huge congratulations to Sevenoaks PFC, who were pushed all the way to penalties by Teesside Steel PFC in the 2026 National League Premiership Play-Off before securing their place in the top flight for the 2026/27 season! 💥

New personal achievement🏆at 2025/2026 South East Powerchair Football League, winning the Division 1 Player of the Season...
13/05/2026

New personal achievement🏆at 2025/2026 South East Powerchair Football League, winning the Division 1 Player of the Season award, and Top Goalscorer award after finishing on 20 league goals! Very happy & thanks to all my team mates for helping me achieve the success! 😊 💪 ⚽️

Played at Derby Arena…what an experience, & first time our team has reached the quarterfinals since 2018!
13/05/2026

Played at Derby Arena…what an experience, & first time our team has reached the quarterfinals since 2018!

Well this is wonderful news for the Duchenne community but bittersweet for me as sadly the National Institute for Health...
08/05/2026

Well this is wonderful news for the Duchenne community but bittersweet for me as sadly the National Institute for Health and Care Excellence (NICE) have decided NOT to approve the drug for non-ambulant, so all those that can’t walk like me are left out…again! This decision has taken NICE 2 years…2 years of damn hard graft from those involved in the Duchenne world…Where is the inclusivity NICE or is it simply about cost £££?!! Where is the hope for the non-ambulant population living everyday with Duchenne knowing our arms, our hearts etc etc are getting weaker and weaker…yet you decide to deprive access to a now approved drug to slow this awful disease down! Shocking and sad! 😢

On a landmark day for our community, we are delighted to share that the National Institute for Health and Care Excellence (NICE) has recommended givinostat for use on the NHS in England. In final draft guidance issued today, NICE approved the treatment for people with Duchenne muscular dystrophy who are ambulant (able to walk or stand), aged six and older.

After a long and challenging NICE appraisal process that lasted almost two years, and 18 months after the treatment was approved as safe and effective by the Medicines and Healthcare products regulatory agency, this marks a pivotal moment for people with Duchenne.

Today’s news offers real hope for children and young people with Duchenne and their families. It is the culmination of 14 years of work by Duchenne UK, our partners and other organisations, helping to drive advances in research, expand clinical trials and accelerate access to new treatments in the UK.

You can read more about this decision, and what it means, here: duchenneuk.org/givinostat-approved-for-use-in-nhs-england/

One hell of a journey—but what an experience! ⚽️Final National powerchair football Premiership league games took place t...
20/04/2026

One hell of a journey—but what an experience! ⚽️

Final National powerchair football Premiership league games took place the weekend, and it all came down to our last match yesterday. We secured a 2–0 win, and with the result going our way in the WBA Throstles v GBG Knights game, we managed to avoid relegation!

So happy and incredibly proud of myself and all my teammates. Bring it on! 💪⚽️😁

Huge thank you to everyone who supports me 💙I’ve just hit 657 followers 🙏👏 — a number that feels extra meaningful…Did yo...
09/04/2026

Huge thank you to everyone who supports me 💙

I’ve just hit 657 followers 🙏👏 — a number that feels extra meaningful…

Did you know the human body has 657 muscles? 💪
Those same muscles are what my Duchenne MD is constantly trying to weaken.

That’s why the work of the Muscle Help Foundation means so much. Their mission? To deliver 657 life-changing muscle dreams to young people living with muscle conditions 💙

They’ve just opened their first 2026 dream nominations — if you or someone you know qualifies, I honestly can’t recommend it enough 🙌

Thank you for being part of this journey 💙💪😎

Nominations are now open for several of our programmes, including Wetwheels Hamble, Be a Master of the Sea VIP Cruise Ship Day, flying experiences, plus many more.

To find more more and to make a nomination, visit: https://www.musclehelp.com/muscle-dreams/nominate-programmes/

We welcome applications from everyone, including children’s hospices; however, priority will be given to those who have not yet experienced one of our Muscle Dream Programmes.

Good luck everyone!

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08/04/2026

Fabulous to see the sport getting featured on BBC Breakfast today. I play in the Premiership league with my team 💪😎⚽️

WOW! WOW!! ⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️ What an incredible day and experience at St George’s Park on my powerchair football emerging tale...
02/04/2026

WOW! WOW!! ⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️ What an incredible day and experience at St George’s Park on my powerchair football emerging talent programme. Felt amazing to be here today, with 8 of us selected nationally to attend and receive training and assessment from England 🏴󠁧󠁢󠁥󠁮󠁧󠁿 coaches! Definitely worth the long journey and think Dad was in his element too!! 😉 🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️💪🏴󠁧󠁢󠁥󠁮󠁧󠁿😁⚽️ 🏴󠁧󠁢󠁥󠁮󠁧󠁿
John Shippey Kerry Shippey

As 2025 comes to a close, I want to say a huge thank you to my friends, family, and everyone who has supported me and th...
31/12/2025

As 2025 comes to a close, I want to say a huge thank you to my friends, family, and everyone who has supported me and the Cure4George cause this year. Your kindness, generosity, and encouragement mean more than words can say 🙏
Wishing you all a happy, healthy, and hopeful 2026 💙

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Burton Upon Trent
DE13 9PD

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