John 'Pops' Dementia From The Inside

23/12/2025

https://www.telegraph.co.uk/gift/c9803dabf69ee406
Hugely proud of Ariana and her support for me and my Dementia… The Telegraph chose to do this article based on something they picked up from The Alzheimer’s Society page… Hopefully this may encourage and help other children in families touched by Dementia.. John Pops Hyde x

When her grandad was diagnosed with dementia aged 60, Ariana inspired him to find purpose in helping others – and shaped an unbreakable bond

03/07/2025

I was recently asked a question about my Dementia Diagnosis.

THE QUESTION; Would you have any words that may describe the challenges dementia brings, or that may have changed your life since the diagnosis.

MY ANSWER; Thank you for prompting me to be a little more realistic and for allowing me to address, and reflect on, my own diagnosis.

So, do I have any words?

Yes, I do…!!

FIRSTLY it has installed a ‘WORD’ filter and scrambler into my speach. It hides the right words from me randomly, and throws others into a blender which then pours out of my mouth as a verbal mess few can make sense of. I detest this aspect of my disease.
YES, Dementia has cancelled whole parts of my everyday life for no reason, and I hate it.
NO, there isn’t a Ctrl-Alt-Delete ‘Dementia’ on my keyboard. If only it were THAT simple!
YES, it redacts and censors my life CV without my permission.
NO, my family cannot do anything except witness my humanity slowly being ripped out of me and shredded word by word, page by page, day by day. I hate that they have to watch this.
YES, it overlaps my present with my past; some days are simply a time-checkered blur.
ALSO, My Dementia has wiped my internal geography, my organised spreadsheet I had in my head of each of my days, my diary and my calendar… all in one single diagnosis.
Others help me with these things now. I do not like asking or the admission of failure. HOWEVER, I do acknowledge that asking for help is NOT giving in. It’s the precice opposite.
AND, Dementia has deleted irreplaceable memories of past happy and joyous times, leaving sad, blured or empty photo frames inside my head. Despite continual searching, they never reappear.
PLUS, it has erased actual names from family and friendly faces and pulled into the abyss complete past connections and histories I had built with friends. This upsets me more than I admit.

BUT… I still push myself fully every day to DO SOMETHING WITH MY DIAGNOSIS…?

For my grandchildren, and all the other children of this place who we, as parents and the keepers of this unconditional love, need to protect from this deadly disease with every fibre of our beings.

The entire aim of my videos, talks and visits to schools is to plant a seed of hope in their minds that will comfort them and also, for a few, inspire into research towards a cure.

I am not in a place any longer that wishes a different life for myself.

But I DO wish for a future world for everyone without Dementia.

It’s people like you, who have invited me back into society and saved me from a wasted final lap of life. You have inspired and allowed me to shout this message from every corner of my remaining days.

So, please just share among friends and coleagues and just ask if I can help in anything with what capacity I have left?

Many Blessings,

John ‘Pops’ Hyde…

02/07/2025

Pops tells us what brought him out of his depression after his Dementia diagnosis.

02/07/2025

Hi guys… this is a LONG video, but tells you the reasons why I try to stay POSITIVE with my diagnosis and do PURPOSEFUL things with it… Bristol University asked me about my diagnosis, my thoughts about my family and the reason why I continue to push educating the children about it through the Mr Sloop story books and my visits to local schools here in Bristol. I don't expect this to go viral, as there are no stupid cats, stupid fails, babes or any mention of him across the pond. So, be prepared for just me babbling on about my journey, oh, and the Pidgeon ‘sitting’ on my head was not planned! Many blessings, John ‘Pops’ Dementia from the Inside.

20/06/2025

https://youtu.be/do7uphjyhF0
Are you a GP, Doctor, Memory Clinic Consultant or Clinician working in the Dementia field? Then this is a help video for you! It suggests ways and methods through caring, but structured, considerations to take you through the preparations and the actual diagnosis delivery meeting in order to be both factual and caring. We know you are always this anyway, however evidence suggests that some find this particular part of the role challenging. This is why the video was made, to help both you guys and the person receiving the actual Diagnosis and their families. The video was made by Joe Webb and others at Bristol University, together with myself and others who journey with Dementia. In Joe’s Words; "Memory diagnosis meetings can be a difficult space for interaction, for both clinicians and patients. Being given unclear information can cause anxiety and stress. There is little guidance for delivering or receiving a diagnosis based on what happens in practice, which takes into account perspectives of clinicians, companions and people with dementia or Mild Cognitive Impairment.” This is our video to help! Many Blessings, John.

This video in the series of three is aimed at GP’s, Consultants and Clinical staff who are involved in the Diagnosis delivery Meetings. It was designed and p...

20/06/2025

https://youtu.be/iymrr2HP_UI
DIAGNOSIS MEETING - WHAT TO EXPECT - A GUIDE FOR PATIENTS AND FAMILY
This video in the series helps prepare the patient and their loved ones, family etc., on what to expect when they go for the Diagnosis Delivery Meeting. This will not be exactly as is presented at all meetings of this nature due to differences in understandings from the clinicians point of view and the history they have with their patients. However it does give an indication of what you should, or could, expect. Taking notes is also suggested as sometimes even for the carer/loved one it may be far too much to understand and take in at one go.

This video in the series helps prepare the patient and their loved ones, family etc., on what to expect when they go for the Diagnosis Delivery Meeting. This...

20/06/2025

One of the proudest and most fullfilling things I have ever done... Being asked to contribute to a study, lasting nearly three years, on how better to improve the diagnosis delivery of Dementia for anyone in the future facing this same moment in their lives. As a group of ‘lived experience’ people with the diagnosis, and along with Joe Webb and Jemima Dooley at Bristol University helped in the production of these three videos. This first one, suggested by myself and adopted for the study, explains the workings of the W.R.E.N Framework which is a guidance template for ANY clinician or GP on how to deliver that painful Diagnosis, be it for Dementia, Cancer or any other hugely life-changing disease or illness. I structured it in a way to allow flexibility along a route that removes the worry for the clinicians of missing something important. We hope this particular video helps all future medical students in an otherwise and sometimes neglected part of their learnings. Many Blessings, John Pops Hyde Bristol Dementia Action Alliance Alzheimer's Society BBC Bristol

I am very proud to have worked on and suggested my W.R.E.N framework for the better delivery of the diagnosis. Although originally designed to help GP’s, Con...

10/06/2025

https://youtu.be/LV0f4KoOCs0 JOHN POPS Discusses Time & Dementia.. This is what Dementia steals from us, actual days, dates, weeks and time itself! Look out for more of these discussions over the coming weeks, or did I mean months? or even days? You decide for me as i’m fed up of forgetting all this important stuff! Many Blessings, John Pops Hyde

HOW DEMENTIA DEALS WITH DAYS MONTHS AND THE CALENDAR - JOHN’S SLANT ON HOW DEMENTIA STEALS OUR UNDERSTANDING OF ALL THINGS TIME RELATED - DAYS, WEEKS, MONTHS...

23/05/2025

Ten points if you can 'spot the pops' in these photos!

22/05/2025

Hi Guys, well, here is the short clip from last nights ITV News West Country about Targets being removed from the governments Dementia and Healthcare plan for 25/26... Doesnt make sense to REMOVE these targets so I have written to both Kier Starmer and our local MP’s asking the question, WHY? (Not expecting an answer, but at least i’ve tried). Many thanks for all your support and you never know unless you do these things... Many thanks for all your kind words and support, Blessings, John Pops

To Sir Kier Starmer…When I wake in the morning I thank that I have been gifted another day to help my family and others, and I promise the person I see in th...