Sussex SEND Families

Sussex SEND Families Sussex SEND Families: a grassroots watchdog using evidence, research, and real stories to expose what the SEND system hides.

19/10/2025

Welcome to Suitable Education for Every Child (SEFEC)

This page exists because thousands of children across England are being denied their legal right to suitable full time education - and it's time we stopped accepting this as inevitable.

The Law:

Section 19 of the Education Act 1996 places an absolute duty on local authorities to arrange suitable education for any child of compulsory school age who cannot attend school - whether due to illness, unmet needs, mental health, trauma, exclusion, or any other reason.

This duty applies to all children of compulsory school age - whether they have an EHCP or not, whether they're on a school roll or not (unless EHE), whether they have a formal diagnosis or not.

The law says provision must be arranged "as soon as it is clear" a child will be absent for 15 days or more, and must start "at the latest by the sixth day" of that absence.

The Reality:
Children wait not 6 days, but weeks, months, often years - with nothing.
Meanwhile, local authorities across England:
* Require specialist diagnoses and medical evidence that aren't required in law
* Operate gatekeeping panels (like "Medical Needs Panels") that treat a statutory duty as if it were discretionary provision
* Tell families "the school is responsible" and tell schools "work with the family" whilst avoiding their own duty
* Offer unsuitable provision that doesn't meet children's needs and replicates what failed them at school
* Fine and prosecute families for absences whilst failing to arrange the education they're legally obligated to provide

And here's what makes this systematic, not just individual failure:

Local authorities are repeatedly found at fault through judicial reviews and Local Government Ombudsman complaints. They're told to apologise, change their policies, compensate families.

Then they do exactly the same thing to the next family.

There's no oversight checking whether they've actually changed their practices. No consequences for repeated breaches. Just individual families fighting individual battles whilst the system continues failing everyone else.

Who we are: SEFEC is a grassroots movement challenging these systemic failures. We're families who've experienced this, educators who've watched children disappear from the system, and advocates who are tired of seeing the same councils breach the same duties over and over with no accountability.

We believe that every child deserves education that is accessible, meaningful, and meets their needs - without barriers, gatekeeping, or excuses.

An offer of education means nothing if a child cannot actually access it.

What we're doing:

Our founding campaign, 15 Days and Counting, tackles the gap between law and reality under Section 19. We're launching a parliament petition demanding:
1. Clearer guidance that councils can't misinterpret - explicitly prohibiting the unlawful barriers they currently use
2. Transparency through monthly published data on how many children are waiting, for how long, and why
3. Proactive oversight through annual audits - not just reactive complaints after children have already been failed
4. Real consequences including fast-track appeals and financial penalties for systematic breaches
5. Protection for families so they're not fined or prosecuted when councils fail to provide education
6. Ring-fenced funding so councils can't use budget pressures as an excuse

But SEFEC is broader than one campaign.

We're:
* Redefining what "suitable" means (by children's actual needs, not what's convenient to provide)
* Bridging divides between families and schools (who are being weaponised against each other by councils avoiding accountability)
* Exposing systemic failures that affect thousands, not just individual cases
* Building coalitions for lasting change

This isn't just about children with EHCPs. Many families don't realise Section 19 exists or that it applies to their child. This lack of knowledge creates inequality - families who know their rights can challenge unlawful denials, whilst those who don't (often families already facing multiple disadvantages) cannot.

Children's rights shouldn't depend on their parents' legal knowledge.

How you can be involved:

Just want to follow along? Follow this page for campaign updates, petition launches, resources, template letters, and ways you can help from the sidelines (signing, sharing, amplifying).

Want to be actively involved? Join our WhatsApp group [https://chat.whatsapp.com/DNA4wdyFvZ5KwjoHPVqw8G?mode=wwt] to help shape campaigns, gather evidence, create content, strategize, and build this movement together. This is grassroots organising - collaborative, messy, and powerful.

Why this matters:
Every day without suitable education is a day of lost learning, worsening mental health, and reduced life chances. Every family fighting alone deserves support. Every school blamed for systemic failures deserves better. Every council breaching the law should face consequences.

We refuse to accept that:
* Children should wait whilst councils create barriers that don't exist in law
* The same authorities can be found at fault repeatedly with no systemic change
* Families should fight battles they shouldn't have to whilst schools are blamed for the impossible
* Education is something you only get if your parents know to demand it

If that resonates - welcome. Follow the page. Join the group. Share our campaigns. Use our resources. Tell your story. Become part of this.

Every child deserves education. Not on paper. In reality.

Hi everyone,We're sharing an important guest article today from Amber Windsor at Canary SEND about a dangerous new think...
31/08/2025

Hi everyone,

We're sharing an important guest article today from Amber Windsor at Canary SEND about a dangerous new think tank report that threatens SEND rights.

Policy Exchange has just published "Out of Control" - a report that looks sympathetic to struggling families at first glance, but actually calls for dismantling the Children and Families Act 2014 and stripping away statutory protections our children depend on.

With a SEND White Paper expected imminently, this isn't just academic debate - it's a direct threat to our children's futures. The report uses sophisticated propaganda techniques to make the removal of rights sound like "common sense," and we need to be ready to push back.

This matters for families because:

•It could influence upcoming government policy on SEND
•It attacks parents as having "excessive influence" - undermining our expertise about our own children
•It reframes rising EHCP numbers as "over-medicalisation" rather than long-overdue recognition of need
•It presents false choices designed to make rights removal seem inevitable

Amber's analysis exposes exactly how this propaganda works and why we must resist it. She also provides concrete actions we can all take - because knowledge is power, and we're stronger in numbers.

Please read, share, and most importantly - don't let this narrative go unchallenged when you encounter it.

The article includes details about:

•How to spot and counter the propaganda techniques being used
•The real economics of early intervention vs crisis management
•Why parental expertise is legally recognised and essential
•Upcoming opportunities to make your voice heard, including the 15 September protest at Parliament Square

Our children aren't the problem - they're the signal that systems need to change. Let's make sure that signal is heard.

Read the full article here:

A new think tank report threatens to roll back hard-won protections for disabled children. We must not let austerity masquerade as common…

They destroyed access to justice in 2013. Most people never noticed.Now they're using the exact same playbook on SEND ri...
08/08/2025

They destroyed access to justice in 2013. Most people never noticed.

Now they're using the exact same playbook on SEND rights.

This isn't policy failure. It's "procedural erosion" - the deliberate strategy of making rights impossible to enforce until families give up fighting for them entirely.

We've analysed how Legal Aid was systematically dismantled under the guise of "reform" - and the parallels with what we're hearing about SEND are chilling. Same language. Same promises. Same devastating outcomes.

From 1 million families able to access legal help to just 100,000 in seven years. Rights that exist only on paper aren't rights at all.

The proposed SEND changes aren't happening in isolation. They're part of a cross-sector pattern to reframe rights as burdens and dress up disinvestment as innovation.

But this time, we can see it coming.

Read our full analysis in "Beyond Reform: The Coordinated Dismantling of Disability Rights in England, Part Two: Procedural Erosion – What Legal Aid Taught Us About Dismantling Rights"

🔗 https://medium.com//beyond-reform-the-coordinated-dismantling-of-disability-rights-in-england-9296eae4d0c0

Earlier this week, some MPs finally said out loud what so many SEND families have lived for years. They named the exhaus...
16/07/2025

Earlier this week, some MPs finally said out loud what so many SEND families have lived for years.

They named the exhaustion. The trauma. The game-playing.

It's not enough.
But it matters.

In a debate on SEND in the South East, a handful of MPs spoke with more honesty than we've heard in years.

Sussex SEND Families isn't here to hand out praise.

But we're here to notice. To name it. To hold them to it.

This system doesn't just need reform.
It needs truth. Rights. And accountability.

🚨 SEND "reform" is coming - andThe government says they're making things fairer, faster, more inclusive.What they're rea...
14/07/2025

🚨 SEND "reform" is coming - and
The government says they're making things fairer, faster, more inclusive.

What they're really planning on doing?
Stripping away the only legal protections children currently have.

They're not fixing the system.

They're talking about removing the only parts that still work - then calling it progress.

And it's not just about children.

It's part of a wider pattern: rights being quietly dismantled, one "reform" at a time.

🧯We've broken it down in Part One of our new series: ‘Beyond Reform: The Coordinated Dismantling of Disability Rights in England - Part One: Smoke and Mirrors - What SEND Reform Really Means'

📍Link in comments

Brighton & Hove City Council claims just 19 children were missing education in 2024.In 2022, that number was 290.Nothing...
10/07/2025

Brighton & Hove City Council claims just 19 children were missing education in 2024.
In 2022, that number was 290.

Nothing in their policy changed. But something in their reporting did.

We dug through FOl responses, internal documents, and national guidance - and what we found was deeply concerning…

Address

Brighton And Hove

Website

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