19/08/2026
Update ❤️
After the incredible effort my friends and family put into the recent fundraiser, I just wanted to say thank you from the bottom of my heart.
I honestly don’t have the words to express how grateful I am. The love, kindness and support you’ve all shown me has carried me through some of the darkest days of my life. I will never forget what you’ve done for me.
It’s coming up to a year since I received my diagnosis of MND and, if I’m honest, I still haven’t fully got my head around it.
Every single day is a fight.
I made a decision early on not to become attached to the diagnosis or the label. Instead, I’ve thrown myself into researching health, nutrition and everything I can about the human body. Learning gives me purpose and keeps me moving forward, but it’s also mentally exhausting when your body continues to do things you have no control over.
My mobility has steadily declined and my nervous system feels like it’s in a constant state of panic. I struggle to sleep, to eat, to walk… things that most of us take for granted have become daily challenges.
I dig so deep every single day to keep my faith and stay positive, but the truth is that some days it all becomes too much. I’m constantly caught between hope and wondering whether I’m simply in denial.
It’s like light and darkness are at war inside me.
I’m trying to make sense of my life, my purpose, and why this has happened. Surely this isn’t the end of my story. Surely there’s more.
I’m not ready to say goodbye to my family. The thought of leaving them breaks my heart. At the same time, I hate watching them witness my suffering. I’d rather leave this world peacefully than lose any more of the dignity that this disease slowly takes away. Yet despite everything, there is still a part of me that believes there is hope… and as long as that hope exists, I have to keep fighting.
Over the past few months I’ve continued searching for answers. Through private testing, I discovered evidence suggesting possible Lyme disease and other infections such as Epstein-Barr virus (EBV) and cytomegalovirus (CMV). As many of you know, Lyme disease can sometimes be considered during the assessment of neurological illnesses, but the testing and interpretation are complex and remain controversial.
Feeling overwhelmed and unsure where to turn, I contacted the Tick-Borne Disease (TBD) Clinic.The TBD Clinic: Treating Lyme and Co-infections
I honestly cannot put into words how grateful I am to everyone at the TBD Clinic and
From the very beginning they treated me with kindness, compassion and genuine care. They very generously supported me with comprehensive testing, specialist consultations and guidance that I simply wouldn’t have been able to access otherwise. At a time when I felt frightened, confused and desperately needed someone to listen, they made me feel seen, heard and supported.
The more in-depth testing identified evidence of Borrelia using testing methods that differ from those routinely used within the NHS. Whether this proves to be a significant part of my journey remains to be seen, but I know in my heart that I have to explore every reasonable avenue. I’ve read stories of people whose health has improved after treatment, and with so much at stake, I have to try.
To every single person at the TBD Clinic and GLDX… thank you.
Not just for the testing or the consultations, but for giving me something that is incredibly precious when you’re living with a disease like this.
Hope.
You are truly real-life angels, and I will never forget your generosity or the difference you’ve made to my life.
Next month I’ll be travelling to Edinburgh to see a specialist and will most likely begin a herbal treatment protocol. I have no idea where this road will lead, but I do know this…
I’m not giving up.
I’ll continue to fight with everything I have, while also trying to cherish every single precious moment with the people I love.
Thank you to everyone who continues to stand beside me, pray for me, encourage me, support my family and believe in me when I struggle to believe in myself.
You are carrying me more than you’ll ever know.
With love,
Kate ❤️
