DEBRA UK

06/09/2026

🕷️ An unforgettable day for our members. 🦋

Today, some of our DEBRA members enjoyed a special screening of Spider-Man: Brand New Day, followed by a Q&A with Tom Holland.

It was wonderful to be part of an event bringing together so many incredible children, families and charities from across the UK, creating special memories and sharing unforgettable experiences.

A huge thank you to The Brothers Trust for inviting our EB community and for the many years of support you've shown DEBRA. Opportunities like these mean so much to families affected by EB, and we're incredibly grateful for your kindness and generosity!

If you're living with EB or caring for someone who is, becoming a DEBRA member gives you access to opportunities, events and experiences like this, as well as a community that understands the challenges of living with EB.

💙 Find out more about becoming a DEBRA member: https://bit.ly/45By4dK

06/09/2026

🎥 "I've got pictures in my head that I can't unsee."

If you missed Graeme Souness CBE on BBC Breakfast yesterday, he shared why he's taking on the toughest challenge of his life for DEBRA.

Graeme has already swum the English Channel for people living with EB. Then he went even further, swimming there and back. Now, he's raising the bar once again with an extraordinary new challenge.

Why? Because after meeting children and adults living with the daily pain of EB, he knows that enough will never be enough until effective treatments are found.

💙 The goal is to raise £500,000, enough to fund an EB clinical trial that could help bring a potentially life-changing treatment closer to reality.

Inspired by Graeme's determination? Please consider donating today.

Every peak. Every step. Every donation helps bring us closer to effective treatments and a future where no one has to live with the pain of EB.

👉 Donate here: https://justgiving.com/campaign/graeme

05/09/2026

📺 It's official! You may have seen DEBRA President Graeme Souness CBE on BBC Breakfast earlier today...

We're excited to announce that this month, Graeme is taking on his toughest challenge yet for people living with EB, also known as butterfly skin.

After swimming the English Channel for DEBRA in 2024 and completing a double Channel crossing in 2025, Graeme (and some friends!) will now climb the three tallest peaks and swim in the three highest lakes in the UK, all in just three days.

Graeme's goal is to raise £500,000 towards an EB clinical trial that could help secure a potentially life-changing treatment.

Why? Because people living with EB can't wait.

💙 Donate today to help fund a potentially life-changing treatment and give hope to those living with the pain of EB: https://bit.ly/4qEvVah

Every donation could help:

1️⃣ Ease suffering now
2️⃣ Accelerate research into treatments
3️⃣ Bring us closer to a future free from the pain of EB

Together, we can help turn hope into treatment and take a vital step towards a world where no one has to live with the pain of EB.

04/09/2026

🌟 Join us at our Members Connect event in Bristol this November 🌟

Living with EB, or supporting someone who does, can sometimes feel isolating. That's why our Members Connect events are so important. They bring people together to share experiences, make new connections, learn from one another, and spend time with others who truly understand life with EB. 💙

Whether you're a long-time member or thinking about joining us for the first time, we'd love to welcome you.

📅 Saturday 14 November 2026, 10.30am to 2.00pm
📍 Village Hotel Club Bristol
✈️ Plus, enjoy a free visit to Aerospace Bristol after the event!

💙 Open to DEBRA members and their families. Spaces are limited, so book your place today: https://bit.ly/4gv0Jpc

We know that some of the best support comes from connecting with others who share similar experiences, and we hope you'll join us for what promises to be a warm, welcoming day together. 😊

04/09/2026

Living with EB can impact many areas of daily life, including confidence, relationships, and emotional wellbeing. That's why access to trusted information and support is so important. 🫂

This resource from Debra International has been developed to help people affected by EB explore topics such as self-confidence, communication, and personal wellbeing, while sharing insights from both the EB community and healthcare professionals.

Epidermolysis Bullosa (EB) affects every person differently - even when subtype and severity appear the same. People with EB know their own skin best. They intuitively understand what their body can tolerate and where their personal boundaries lie.

That's why today, on , we wanted to highlight this powerful resource which explores questions around self image, s*x, menstruation, contraception, pregnancy and more.

💙 Everyone deserves access to information, support, and understanding.

Read or download the guide: https://bit.ly/4gpQwu9

03/09/2026

A quick update...

Graeme's big announcement has moved, but not for long!

📺 Tune in to BBC Breakfast this Saturday morning (5 September) when DEBRA UK President Graeme Souness CBE reveals his latest fundraising challenge for people living with EB.

💙 Because people living with EB can't wait.

02/09/2026

🎓 Starting university? Managing deadlines? Feeling the pressure of student finances?

That's why the Wisdom app (which is free to all DEBRA members!) offers resources designed specifically for students.

✅ Mental health support
✅ Exam and deadline management
✅ Coping with homesickness
✅ Budgeting and financial wellbeing
✅ Information on grants and student discounts

Student life can be challenging, but support is available whenever you need it. 💙

Find out more on our website: https://bit.ly/4qW3wLq

💬 What advice would you give to a student who's feeling overwhelmed? Share your top tip in the comments and help support the community.

All DEBRA members have access to the Wisdom Wellbeing assistance programme. It gives you free, confidential access to expert support, plus a host of other wellbeing resources and benefits.

02/09/2026

Holiday Homes for DEBRA Members 🌟

Did you know that DEBRA members have access to seven holiday homes across the UK? From relaxing coastal escapes to peaceful countryside retreats, there's a holiday destination to suit everyone.

We know that planning a holiday when living with EB can bring additional challenges. That's why our aim is to help take some of the stress out of finding suitable accommodation, so you can focus on what really matters: making memories, relaxing, and spending quality time together.

What makes our holiday homes special?

Our holiday homes have been adapted, wherever possible, with the needs of the EB community in mind. While features vary by location, every home includes:

✅ Accessible ramp access
✅ A range of bathroom options
✅ Adaptations designed to help make your stay as comfortable as possible

Ready to plan your next getaway?

Visit the DEBRA website to explore all our holiday homes, browse photos, check facilities, and view live availability. Our friendly Holiday Homes Team is always happy to answer any questions and help you find the perfect break. 💙

Find out more today: https://bit.ly/4dK4mHO

01/09/2026

🍂 September's here, the mornings are a little chillier - that can only mean one thing...

DEBRA Christmas cards have officially arrived!

Choose from a range of festive designs, available in packs of 10 and fully recyclable. Every purchase helps DEBRA provide vital support services, specialist healthcare, and fund research into treatments for people living with EB.

💌 Send festive wishes that help make a difference, either pop into your local DEBRA store, or shop online: https://bit.ly/4h4BeMQ

30/08/2026

Our next Research & Health Webinar is on Wednesday 02 September 2026 at the usual time of 1pm.

Professor Helen McCarthy of Queen's University Belfast will talk about:

🔹Messenger RNA (mRNA) therapies for EB
🔹Nanoparticles for delivering gene therapy
🔹‘Smart’ materials for EB wound healing.

Missed one of our Research & Health Webinars? No worries - they're available to watch on our website.

Register or watch now 👉 https://bit.ly/3Z08c6P