Epilepsy UK

Epilepsy UK Here to guide, raise awareness, educate and fundraise. Because we all share experiences related to t Supporting people with any type of connection to Epilepsy.

Aiming to educate, support, fundraise, organise events, raise awareness and share personal experiences.
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ABOUT ME

Hello – my name is Sheila Kaur and I started Epilepsy UK in 2015. I was diagnosed with Primary Generalised Epilepsy at the age of 5 years. There is no known cause and it effects both sides of my brain.
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INSIGHT

I am British by birth and of Indian ethnicity. Growing up I did not know anything much about Epilepsy. I only knew I had epileptic seizures. It was never really discussed by my family and I never told anyone about my health. From what I know – there was hardly (if not no) additional information provided by health professionals to support my parents or myself (outside of NHS services I.e. hospital appointments or GP services). Growing up I never really researched the condition or looked for any further information, until later after becoming a mother in my 20s. It is a shame that many people did not have or know about the additional support networks, that are widely available today. Epilepsy is generally a taboo subject in many cultures, until recently. Related conversations are hardly heard of; many sufferers may feel isolated, lonely and families may live in fear of the unknown. I know further learning, information, resources, events and support is required for better knowledge and understanding of the condition. More offline resources are vital.
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AIM

Is to help all those people with any connection to Epilepsy nationwide. By supporting, raising awareness and educating. Reminding people, we all share experiences related to the same health condition. We are a community and no one should feel alone.

28/03/2026

26th March PURPLE DAY 💜
Here is another news story about Robert Butler's Epilepsy, which was featured on BBC 'East Midlands Today'.

Well Done Robert for sharing your story, which helps raise awareness to the vast audience of the BBC News. 👏

28/03/2026

26th March PURPLE DAY 💜
Here is a news story about Robert Butler's Epilepsy, which was featured on BBC 'East Midlands Today'.

Well Done Robert for sharing your story, which helps raise awareness to the vast audience of the BBC News. 👏

13/03/2026

I’m writing a journal article on the psychosocial impact epilepsy has on us. I would love to have people share how their epilepsy impacts them so I can increase the data I collect. All data is anonymous.

Here’s a link if you’re interested!
https://www.smartsurvey.co.uk//epilepsystudymya

- Mya Kathleen

04/01/2025
22/12/2024

MERRY to everyone and a 'big' Thank You for all your support. Stay safe and have the most festive experience during the week ahead.
May your lives be filled with Joy and Faith.

RESEARCH STUDY
24/10/2024

RESEARCH STUDY

LIGHT CYCLES EXPERIENCE Embarking on any journey or experience one must be sure to reduce the chances of risks and to be...
14/10/2024

LIGHT CYCLES EXPERIENCE
Embarking on any journey or experience one must be sure to reduce the chances of risks and to be safe. So as this immersive experience has lighting and visual effects I decided to contact the company.

Here's the response I received ...
ME - Is this display safe for those with Epilepsy ?
ANSWER - The event may contain strong lighting effects, of which some may flicker or strobe.

ME - So it may not be suitable ?
ANSWER - Yes, it may not be suitable since this will include strobe lights.

ME - Can this clearly be stated on all platforms ?
ANSWER -

For the first time in Birmingham, the immersive Light Cycles experience will take you on a path of light and sound that leads to the heart of nature.

THE CALMCARRYAs someone with Epilepsy, when i see new products i read whether they are safe and suitable to use. After s...
16/04/2024

THE CALMCARRY
As someone with Epilepsy, when i see new products i read whether they are safe and suitable to use. After seeing some posts about this product which is to relieve Anxiety or Restless Sleep episodes; i later decided to contact the company GlowCo if it was safe to use for those with Epilepsy.

Here's the response..
"Thank you for your inquiry. As a safety precaution, it is not advisable to use the CalmCarry device if you have epilepsy. The device emits vibrations, which may potentially trigger seizures in individuals with epilepsy.
We recommend consulting with your doctor or healthcare provider to determine if it is safe for you to use the CalmCarry device given your medical condition."

Thinking of gift ideas for Mom this year? 🤔 We have something perfect! Give the gift of good quality sleep this year to our lovely moms with the CalmCarry and Sleepy Mask bundle, and even better, enjoy a crazy 50% OFF + a free eBook! WOW

💋 💋 INSPIRE INCLUSION is the theme for this year.Together let's share our pledge of driving more change, of positi...
08/03/2024

💋 💋
INSPIRE INCLUSION is the theme for this year.
Together let's share our pledge of driving more change, of positive steps towards the betterment of our services, treatments, care and benefits.

At Epilepsy UK we want to encourage every woman to understand there are others waiting to walk with you - to make the journey easier.
"Reach out without hesitation."

➡️ Share a photograph of yourself with a 🫶 (hand heart) to this post.

We want to show our gratitude towards all the female warriors who go above and over towards helping, supporting, donating, fundraising, volunteering, researching, inventing, battling, recovering, investing, caring, treating and so much more for those with Epilepsy.

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Birmingham

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Monday 9am - 3pm
Tuesday 9am - 3pm
Wednesday 9am - 3pm
Thursday 9am - 3pm
Friday 9am - 3pm

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