Angels Walk Among Us - Hike for epilepsy

04/06/2025

26/03/2025

Today is International day of epilepsy awareness. Purple day 💜

Today is Purple Day!

Purple Day is the international day of and is a global effort to spread information and facts about epilepsy.

We can’t wait to see all your photos, remember to share our posts and tag us in yours!

Your support will help others who are living with epilepsy or those bereaved by an epilepsy-related death.

It’s not too late to register your interest: https://sudep.org/purple-day/

To learn more about what we do, check out our website:
https://sudep.org/

14/11/2024

This is brilliant 👏 thanks to everyone who donated to my recent challenge, your money has went towards this fantastic ad campaign to bring awareness of SUDEP (Sudden Unexpected Death in Epilepsy)
Thanks to SUDEP Action: Making every epilepsy death count for campaigning so tirelessly to make this happen! 💜

Remember to watch out this autumn for our SUDEP Action digital ad campaign, a series of adverts in prime locations across the UK all thanks to charitable donations.

See if you can spot one!

Don’t forget to share your posts with us 🧡

16/10/2024

16/10/2024

SUDEP Action: Making every epilepsy death count SUDEP Action Day 2024

This fantastic charity works tirelessly to support families like ours who have lost a loved one to SUDEP, they campaign for the rights of people with epilepsy and aim to save lives by helping to decrease cases of SUDEP.
Thanks to all who supported me during my recent challenge your donations have supported the wonderful work of this charity 💜🙏

Today is & we are uniting with organisations around the world to raise awareness of the rights of people with epilepsy or those bereaved by it.

The epilepsy community is entitled to have their questions answered and have the right to information, medication and care.

Share our posts and tag us

09/07/2024

Just a wee update. Thanks to my Auntie Marie, and cousins Fo Woodhouse and Sinead Scannell for their recent donations an amazing amount of £1,130 plus gift aid has now been raised for this very worthy charity SUDEP Action: Making every epilepsy death count in memory of Marian 💜
Thank you all so very, very much! 💜👏

08/07/2024

Lovely write up by SUDEP Action about my challenge in memory of Marian and very fitting that it was released today on her 3rd Anniversary 💔💜

A fantastic amount of £1,130 has been raised for this wonderful, hardworking charity!

Thank you all so much for the donations and support and for following my journey it's much appreciated by myself and my family 💜🙏

If anyone else is in a position to donate however small please do so via the link below. The just giving page will be open until 13th July. Thank you 🙏

https://www.justgiving.com/page/sinead-gouldie-1711402992003?newPage=true

05/07/2024

An amazing amount of £1,080 has now been raised for SUDEP Action: Thanks to my uncle Gerard Dickey for his generous donation and an anonymous donor also 👏💜

03/07/2024

Day 100!!! 🏃‍♀️🎉👏 SUDEP Action: Making every epilepsy death count 500km in 100 days challenge in memory of Marian 💜

Well folks this is it! The challenge has been completed! 👏🎉🏃‍♀️

Over 500km in 100 days! My aim was to raise awareness of Sudep and to raise funds for the UKs leading Sudep Awareness charity, Sudep Action in memory of my beautiful wee sister Marian who passed away as the result of an epileptic seizure in July 2021.

The loss of her has left a hole in my heart and my life that will never be filled. But thankfully I'm surrounded by my wonderful family, my beautiful daughters, my fantastic supportive husband and my amazing siblings. Together we've gotten each other through the bereavement. ❤️

It also inspired me to take on some fundraising challenges in her memory 💜

I began this challenge on 26th March which is Epilepsy Awareness Day. My reason for doing so was to raise more awareness of Sudep.

I can very proudly say that having finished my challenge today we have raised a fantastic amount of £1,027 plus Gift Aid for this wonderful charity!!

Thank you to my cousin Aine Dickey for her recent donation and to everyone who has donated so far I honestly can't thank you all enough! 👏

Through doing this i have realised that I'm educating myself as well as others. I have learned so much about what can trigger seizures, what factors can influence the risk of Sudep, the amount of work and research that this charity does to support and campaign for the rights of people with epilepsy.

Im in awe of the level of commitment they have to be a voice for people with epilepsy. And it has been privilege to raise awareness and funds on their behalf in memory of our beautiful wee Marian 💜

Although its been tough at times i can honestly say i have loved doing this challenge! I've been very lucky that I haven't had any injuries thanks to some great advice from fellow runners 👍 ive made sure to stretch well after every run it's stood me in good stead! 💪 and I can highly recommend to anyone get yourself outdoors for a walk or a run regularly it's so good for your mental health

I've been so overwhelmed by the fact that this page has reached people all over the world who have epilepsy or have lost someone to epilepsy people who have reached out to me who have been through similar experiences 💔

I would just like to thank everyone for their support during this challenge. Those who have donated or simply liked and followed my posts it means so much! 🙏💜

And lastly but certainly not least a massive thanks to family and friends who turned out today during my final run! With a special thank you to Gary for the effort he put into creating a beautiful finish line for me at the Falls Park today! Even the weather played ball with the sun coming out in between the showers for a wee while ! 🌞💜👏🏃‍♀️🎉

There is still time to donate until 7th July if you'd like to please do so via the link below

https://www.justgiving.com/page/sinead-gouldie-1711402992003?newPage=true

02/07/2024

Day 99 SUDEP Action: Making every epilepsy death count 500km in 100 days challenge in memory of Marian 💜

Can't believe it's the penultimate day of my challenge! 👏 It has absolutely flown by

Another 5k run ticked off ✅️ only 1 more to go!

Today I ended up having a wee adventure on my run haha 😄 I decided to do the parkrun route at Colin Glen forest Park i didn't even get half way through when i remembered the gates were going to close in 5 mins! 😨 I ran up towards the exit to poleglass and not knowing my way about up there had no idea which path to take to get back onto the Stewartstown Road 🤦‍♀️ asked someone who sent me off the wrong way so wasted a bit of time running about having no idea where I was lol but a quick phonecall to my wee Alana she has a great head for directions saved the day and she directed me back down unto the main road, sure now I'll know for next time!

Anyway we had a lovely family meal last night at Goodfellas pizza , good food and a great catch up with each other with plenty of reminiscing about our wee Marian 💔 💜💪

I'd just like to say a big thank you to my beautiful Becca for her donation, we have now reached an amazing amount of £1,010 for such a very worthy charity. 👏

As always thanks everyone for all your support, donations likes and comments it means alot 🙏
There's still time to donate if anyone else would like to do so please use the link below

Last run of the challenge tomoro! 🏃‍♀️💜

https://www.justgiving.com/page/sinead-gouldie-1711402992003?newPage=true