Lmbrd2 Association

Lmbrd2 Association LMBRD2 France est une association à but non lucratif dédiée à l’accompagnement des familles concernées par la maladie rare liée au gène LMBRD2.

✨ Non profit raising awareness for LMBRD2, a rare genetic condition
🦸‍♂️ Our kids are rare — and heroic
💛 Advocacy • Community • Hope
🔗 Together, we make the invisible visible

https://linktr.ee/lmbrd2.association Elle œuvre pour rompre l’isolement, informer et soutenir les proches au quotidien, tout en favorisant le lien entre patients, familles et professionnels de santé. Engagée pour l’avenir,

l’association soutient et encourage la recherche scientifique afin de mieux comprendre la maladie, améliorer le diagnostic et faire avancer les prises en charge.

Making music, making magic featuring superhero Oaklen! 🎶
31/05/2026

Making music, making magic featuring superhero Oaklen! 🎶

1 year of hope, awareness, research and community! Thank you for being a part of our journey!
27/05/2026

1 year of hope, awareness, research and community! Thank you for being a part of our journey!

Every step was worth the wait 👣
24/05/2026

Every step was worth the wait 👣

LMBRD2: one gene, lasting impact 🧬
20/05/2026

LMBRD2: one gene, lasting impact 🧬

Big Milestone: A Voice Unlocked 💬
17/05/2026

Big Milestone: A Voice Unlocked 💬

LMBRD2 gene: What do we actually know so far and the need for further research🔬🧬
13/05/2026

LMBRD2 gene: What do we actually know so far and the need for further research🔬🧬

Happy Mother’s Day 💙🌸
10/05/2026

Happy Mother’s Day 💙🌸

Tiny Flies, Big Science 🪰
06/05/2026

Tiny Flies, Big Science 🪰

Community Board Sunday: Words an LMBRD2 mom shares with her child on the hard days 💙Join us on Sundays to hear from the ...
03/05/2026

Community Board Sunday: Words an LMBRD2 mom shares with her child on the hard days 💙

Join us on Sundays to hear from the LMBRD2 community. If you have any questions that you would like answered by the community please feel free to comment or message us!

Meet LMBRD2– the under-the-radar gene worth knowing about. 🧬 Part of our weekly series spotlighting a gene that flies un...
29/04/2026

Meet LMBRD2– the under-the-radar gene worth knowing about. 🧬 Part of our weekly series spotlighting a gene that flies under the radar.

💬 If you have questions about LMBRD2, comment or message us so we can answer them in our weekly series starting next week!

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Haubourdin
59320

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