Families for Accountability, Inclusion and Reform

Families for Accountability, Inclusion and Reform We are families of loved ones with intellectual disabilities in Ontario group homes, advocating for change.

We seek direct funding, reform, and a more accountable & respectful system that empowers individuals to make decisions about their care and future.

THE SAME GRANDMA DENIED ACCESS to her GRANDDAUGHTER has written a letter and asked that we share it.... this is the SAME...
05/19/2026

THE SAME GRANDMA DENIED ACCESS to her GRANDDAUGHTER has written a letter and asked that we share it.... this is the SAME Grandma whom SB also cancelled van transportation for her grandaughter to come for visits - Grandma doesn't drive..............................................................................................................................
I am the 94-year-old grandmother of L, who lives in a SB home in Kitchener. L is very precious to me. She has always been one of the great joys of my life, and spending time with her means more to me now than ever, especially as I face a terminal illness and know my days are limited.

It has been heartbreaking for me to experience being refused entry to visit my granddaughter unless my daughter, who drove me there, left the property. My daughter herself has been banned from her daughter’s home for nearly two years now. As a mother and grandmother, I never imagined we would ever face something like this simply for loving and advocating for L.

For over 21 years things seemed peaceful and caring in that home, but the past six years have been very different. To me, it no longer feels like the warm home it once was. Sometimes it feels more like a jail than a home, and I can see by the look on L’s face that she is unhappy returning there. A grandmother knows these things.
My daughter has devoted her whole life to caring for and protecting L. She is a loving mother who only wants the very best for her daughter, yet she has been treated in ways I cannot understand. Communication has been restricted, and even taking L out for family visits has become difficult. We are expected to give 2 hours notice before seeing her, despite my daughter being her legal guardian. It leaves me wondering why loving family members are treated this way.

Over the years I have also met other parents and grandparents in Ontario going through similar struggles with group homes. It should never happen. These vulnerable people depend on their families, and families should be welcomed, not pushed away.
One evening I personally witnessed behavior toward L that deeply upset me. My heart broke for my sweet girl that night. No grandmother should ever have to leave feeling that way.
I truly believe what is needed is caring, compassionate leadership that works alongside families instead of against them. Families know their loved ones best. We are not the enemy — we are part of the support system.

I remember when L was just a baby and her parents came home from Sick Children’s Hospital after receiving difficult news about her condition. From that day forward, my daughter has carried the weight of caring for L with incredible strength and love. She never gave up on her daughter, and she never will.

It saddens me deeply to see mothers and grandmothers treated this way after dedicating their lives to their children and grandchildren. In my 94 years on this earth, I never thought I would witness such cruelty toward families simply trying to protect and love their vulnerable loved ones.

I also struggle greatly with the issue of opposite-sex intimate care for vulnerable women who cannot speak for themselves. Many women would feel uncomfortable with intimate personal care from a man, and vulnerable women deserve dignity, privacy, and respect as well. These concerns should not be dismissed.

Betty - 94 year old grandmother to L
….

We hope everyone is enjoying their long weekend. We know some of you are struggling. We hope the sun is shining wherever...
05/17/2026

We hope everyone is enjoying their long weekend. We know some of you are struggling. We hope the sun is shining wherever you are, and that makes things a little brighter. If you feel like it's you against the world advocating for your child's needs within an agency-operated and ministry-funded group home within Ontario, PLEASE reach out to us. Maybe we can help. We have the combined knowledge and experience of dozens of families across Ontario who are or have been in your shoes. You are NOT ALONE.

It's time to stand up, and it's well past time for CHANGE. TOGETHER we are stronger. Let's make it happen!🙏

Please SHARE, please FOLLOW us and PLEASE sign our online petition (our policy brief is accessible through the petition link below):
https://win.newmode.net/djno/group-homes

This needs to STOP!!! Power needs to be taken from agencies who abuse it. Their unlawful actions are causing irreparable...
05/15/2026

This needs to STOP!!! Power needs to be taken from agencies who abuse it. Their unlawful actions are causing irreparable harm to our vulnerable and disabled (adult) children who are unable to speak for themselves. Agencies need to be held ACCOUNTABLE for their actions. This is the individual's home, she is entitled to have her loving family visit her anytime. This is absolutely heartbreaking 💔... shame on this agency. Their retaliation tactics benefit no one, most especially not the very individual they are funded to support in living her best life 😪. It is a blatant disregard of persons' rights, choices and feelings, all because they are non-verbal, and sadly we are seeing it all too often. There are some incredible agencies out there focused on the individual with inclusion, dignity and respect in mind. Sadly it's the actions of these few that give them all a bad name.

If you are in London...
05/14/2026

If you are in London...

Rights should not disappear behind group home doors.From one of our Moms:Today I attended a care plan meeting at the ret...
05/14/2026

Rights should not disappear behind group home doors.

From one of our Moms:
Today I attended a care plan meeting at the retirement home where my 89-year-old mother lives. These meetings take place every six months. As I arrived, residents were gathered happily playing Bingo, completely focused on their cards. I actually walked right past my Mom without her even noticing me.

During our meeting, the Executive Director explained that retirement homes are governed by both the Retirement Homes Regulatory Authority (RHRA) and the Residential Tenancies Act, 2006.

It struck me how similar retirement homes are to ministry-funded group homes for adults with intellectual disabilities — except for one very important difference:

Oversight and accountability.

I jokingly asked the Executive Director whether she considered me a “problem child,” the way my daughter’s group home has labeled me a “problem parent.” She laughed. Staff and residents passed by the open office door throughout our meeting, smiling, waving, and chatting with me. It was obvious the idea seemed absurd to her.

Meanwhile, residents were excitedly preparing for their lunch outing and afternoon music performance. There was energy, connection, and community everywhere around us.

Before leaving, I asked her another question:
“Have you ever heard of a retirement home placing visitation restrictions on family members?”

She looked genuinely confused.

I explained the “Communication and Visitation Protocol” imposed by my daughter’s group home agency several years ago.
I said: “Imagine telling families they must provide 48 hours’ notice before visiting their parent. Or two weeks’ notice to take them home overnight. Imagine forbidding them from speaking directly with frontline staff who provide care.”

Her response was immediate: “What?! How can that happen?”

I told her: “That’s exactly what happened to me.” Because I advocated for my nonverbal intellectually disabled adult child's rights. Some in authority don't like to be challenged so instead of working to resolve an issue they silence the advocate instead... the advocate who happens to be the only voice of the disabled individual.

She shook her head and said: “That’s horrible.”
She then explained that if something like this occurred in the retirement home sector, a complaint would immediately be filed with the RHRA and addressed.

But in Developmental Services, families are too often left to fend for themselves.
Especially when the residents are non-verbal or unable to advocate independently.

These situations continue because Ontario’s developmental services legislation contains significant gaps, minimal oversight, and very limited mechanisms for meaningful accountability.
Families are forced to seek help elsewhere: The Human Rights Tribunal. The Landlord and Tenant Board. The Ombudsman. Civil court.

Families are already exhausted.

And without constant family advocacy, this broken system will continue limping along while vulnerable individuals lose opportunities, independence, dignity, relationships, and quality of life.

We need reform.

We need elected officials willing to champion the rights of adults with developmental disabilities and their families.
Please continue sharing these stories with your MPPs, media outlets, and other families.
Please sign our petition.
Please help us push for meaningful change.

Because families should not need permission to be families.

PETITION: https://win.newmode.net/djno/group-homes

When funded supports disappear, who is accountable?Across Ontario, adults with developmental disabilities are funded for...
05/13/2026

When funded supports disappear, who is accountable?

Across Ontario, adults with developmental disabilities are funded for supports and services based on their individual needs - things like community participation, mobility supports, communication assistance, physiotherapy, pysical activity, recreation, staffing, transportation, and activities of daily living.

But what happens when some of those supports are reduced, restricted, or quietly stop happening altogether?

Too often, there is little meaningful oversight to ensure that the supports outlined in funding proposals and care plans are actually being delivered consistently and effectively. The ministry ensures that there’s a current ISP. Compliance would also look to ensure that the ISP’s contain the components prescribed through QAM (for example, short and long term goals). BUT they do not ensure that these supports and goals are implemented and carried out, just that they are recorded on paper (and/or digital). THAT is where the oversight is lacking...

The result?

The funded individual loses opportunities, abilities, independence, quality of life - and sometimes even important physical or social skills.

Families are left asking:
Where is the accountability?
Who monitors outcomes?
How is quality of life being measured?
What recourse exists when promised supports are not delivered?

This conversation is not about attacking frontline workers or all agencies. Many staff work incredibly hard under difficult conditions.

It is about transparency, oversight, and ensuring that public funding truly benefits the people it was intended to support.
Individuals with disabilities deserve more than funding on paper.
They deserve meaningful lives in practice.

Sadly, we have many real stories about real people this is happening to NOW. If you are with media and wish to feature our stories, please reach out out. We need your help.

Today, we honour a different kind of motherhood too.The mothers of children with special needs.The mothers who didn’t ch...
05/10/2026

Today, we honour a different kind of motherhood too.

The mothers of children with special needs.
The mothers who didn’t choose this path — but chose, every single day, to walk it with fierce love, courage, and perseverance.

This motherhood is filled with appointments, advocacy, sleepless nights, exhaustion, worry, and sacrifices few people ever see.

It is learning medical language you never expected to know.
Fighting battles you never imagined fighting.
Holding your child through meltdowns, illnesses, fears, setbacks, and uncertainty — while somehow holding yourself together too.

It is celebrating milestones others may overlook.
Protecting your child from a world that is not always kind or understanding.
And carrying a level of responsibility that never truly shuts off.

But it is also a motherhood filled with deep love.
Extraordinary strength.
Resilience.
Patience.
And moments of joy so meaningful they could bring you to tears.

To every special needs mom:
You are doing more than most people realize.
Your love matters.
Your exhaustion is real.
Your perseverance is remarkable.
And your child is lucky to have you.

Today, we celebrate you too. 💜

Gender-Based Care - CASE DISMISSED I never imagined that advocating for my beautiful vulnerable daughter’s safety would ...
05/08/2026

Gender-Based Care - CASE DISMISSED

I never imagined that advocating for my beautiful vulnerable daughter’s safety would lead to feeling dismissed by the very systems meant to protect her. As a mother, my job is to speak when she cannot, to protect her dignity, and to make sure her voice is never ignored.

This was never about politics, ideology, or creating division. It was about safety. It was about asking why concerns around same-gender care for vulnerable women are treated as unreasonable instead of precautionary. It was about trying to prevent harm before it happens.

Behind every “case,” every “policy,” and every statistic is a real human being. My daughter is not a number. She is a person. She deserves dignity, respect, and protection just like anyone else.
Families should never be made to feel punished for speaking up out of love and concern for their vulnerable loved ones. Vulnerability is not a statistic. It’s someone’s daughter.

My daughter’s agency failed us in so many ways. There was no walking alongside the families and listening to our concerns. It was a complete dismissal of my concerns.

When I raised concerns and submitted an official complaint regarding her safety and dignity, I was told I should “sign off” on the complaint — but not bring up gender-based care when doing so. I could not in good conscience agree to that.
After I refused to sign, everything changed. Instead of feeling heard or supported as a mother advocating for her vulnerable daughter, I was threatened with “disengagement” and even the possibility of a no-trespass order.

No parent should ever feel intimidated for speaking up about the safety, dignity, and protection of their vulnerable loved one. Advocacy should not be met with threats. Families should be seen as partners in care, not problems to manage.

Although this is discouraging this will NOT stop my advocacy around this IMPORTANT issue.

Michael Parsa
Marit Stiles

We received a letter from one of our mom’s that there will be a possible strike effective May 18th, 2026. Sorry for the ...
05/07/2026

We received a letter from one of our mom’s that there will be a possible strike effective May 18th, 2026.
Sorry for the long post but this is a very important read.

The “Worth Fighting For” movement is an Ontario labour and public services campaign led by unions like OPSEU/SEFPO and CUPE Ontario. Its message is that frontline workers, public services, and the vulnerable people who rely on those services deserve fair funding, fair wages, respect, and safe working conditions.
Some common reasons PSW’s may support a strike or job action include:

*Low wages- Many PSW’s feel their pay does not reflect the physical, emotional, and high-responsibility nature of the work.
*staff shortages- Chronic understaffing can leave workers overwhelmed and increase burnout

*Unsafe working conditions- Concerns may include violence, injuries, lack of backup staff, or being left alone in high-risk situations

*Burnout and mental stress-PSW’s often work long hours caring for people with complex medical, behavioral, or personal care needs.

*Lack of benefits or sick time- Some PSW’s work part-time or casual positions without adequate health benefits, pensions, or paid sick leave. This causes staff to look for jobs elsewhere.

*Inconsistent scheduling- Split shifts, mandatory overtime, or unstable hours can make work-life balance difficult.

*Respect and recognition- Some PSW’s feel undervalued despite being frontline caregivers who provide intimate, essential support

*Training concerns- Worker may feel they are not given adequate training for complex medical, behavioral, or in crisis situations.

*Safety Policies- Concerns about solo staffing, aggressive behaviors, or lack of gender-sensitive staffing protections in vulnerable settings. Some workers struggle with unclear policies around intimate care, gender-sensitive care, or resident’s rights. When they bring up these concerns they are dismissed frequently.

*Mandatory Overtime- Staff may be forced to stay beyond scheduled shifts because no replacement worker is available.

*Poor management communication- Staff may feel unheard or dismissed when raising safety or care concerns.

*High turnover of coworkers- Constantly training new staff can create stress and inconsistency for both workers and residents.

*Lack of respect from the system- Workers may feel decisions are made by administrators who do not understand frontline realities.

*Feeling caught in conflict between families and agencies- Frontline staff are sometimes placed in difficult positions during disputes over care or visitation with families.

*Moral distress- Workers may know what good care looks like but feel the system prevents them from delivering it.

Those are some of their concerns.

I support PSWs and their fight for better wages and better working environments. What I struggle with is seeing Executive Directors and Directors receive significant wage increases over the last four years while many PSWs — the frontline workers doing the most important and demanding work — have seen little to no meaningful increase in pay.

A good system is one where everyone in the organization — from top management to frontline staff and families— has a voice and meaningful input into how care is provided. Everyone should share a common goal: delivering excellent care and support to the people the organization serves. Respect and fairness should exist at every level, with the knowledge, experience, and expertise of all employees being valued and recognized.

With the reforms we are proposing, many of these issues would not exist. The fact that they continue to happen is a reflection of how broken the current system has become.

Address

Toronto, ON

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