Fanconi Canada

03/19/2026

03/04/2026

🎉 100 participants enrolled in the NIH Fanconi Anemia Cancer Screening Study!

The NIH team marked this milestone with a celebration, and we’re celebrating, too. This study would not be possible without our community and the support that makes our work possible.

Because of this progress, 100 people with FA now have access to specialized cancer screening and expert care through this clinical trial. That matters.

We’re grateful to everyone who helped make this moment possible. And we’re not stopping here.

If you or someone you know is living with FA and may be interested in participating, learn more about the study here: https://marrowfailure.cancer.gov/fanconi-anemia/

Let’s keep going and reach the next 100!

03/01/2026

Fanconi Canada is an affiliate member of CORD.

The Official Campaign Video of Rare Disease Day 2026- Learn more and get involved!👉 https://www.rarediseaseday.org/

02/18/2026

Canadian Rare Disease Day Lightings – February 28, 2026

Light Up for Rare is a global movement that shines a light on the 1 in 12 people worldwide affected by rare diseases. Each year, iconic landmarks, buildings, and monuments around the world are illuminated in pink, purple, blue, and green to raise awareness, celebrate the rare disease community, and advocate for better care, research, and support.

If you have arranged for a monument to be lit in Canada for Rare Disease Day, please let us know! Email us at: [email protected]

Ontario
City of Belleville - Belleville sign - Feb 23-Mar 1
City of Belleville - Bridge St Bridge - Feb 23-Mar 1
City of Belleville - Fire station 1 memorial - Feb 23-Mar 1
Mississauga Civic Centre - Feb 26
Oakville Town Hall - Feb 26
Brampton City Hall Clock Tower- Feb 27
City of Guelph Market Square - Feb 27
London City Hall - Feb 27
J. Allyn Taylor building, London - Feb 27
RBC Place, London - Feb 27
King Street Lights/Waterluminate, Waterloo - Feb 28
Hamilton sign - Feb 28
Newmarket, Fred A. Lundy Bridge - Feb 27
Niagara sign - Feb 28
Peace Bridge, Fort Erie - Feb 28
Peterborough City Hall - Feb 28
CN Tower - Toronto - Feb 28
Apron Tower - Toronto Pearson airport - Feb 28
Town of Penetanguishene, Gateway Angels - Feb 28
Vaughan City Hall - Feb 28

New Brunswick
The Avenir Centre, Moncton, New Brunswick - Feb 27-28
Downing St, Moncton, New Brunswick - Feb 27-28
Downtown Place, Moncton, New Brunswick - Feb 27-28
Moncton City Hall, New Brunswick- Feb 28

Newfoundland and Labrador
Signal Hill in St. John's Newfoundland and Labrador - Feb 27

Alberta
TELUS Spark Science Centre, Calgary, Alberta - Feb 28

British Columbia
City of Coquitlam LED light pole, Coquitlam, British Columbia - Feb 28
Nanaimo Bastion, British Columbia - Feb 28

For more information about , and how to get involved, visit:
https://www.rarediseaseday.org/toolkits/lightupforrare/

01/23/2026

The FA Family Retreat brings families affected by Fanconi anemia together to connect, share resources, and learn, all while letting kids be kids in a space built for the rare disease community.

Will you join us in California?! ☀️🌴
✨ No cost to attend
✈️ Travel assistance available

Start your application: https://shorturl.at/GounH

Heads up: the application takes a bit of time to complete, so starting early is a good idea.

12/31/2025

Our goal is to raise money for research into better treatments, and ultimately a cure, for Fanconi anemia.

12/11/2025

Thank you LAWPRO (Lawyers' Professional Indemnity Company) and LAWPRO Employees!

In 2025, a total of $34,980 was raised for five charities chosen by LAWPRO employees including Fanconi Canada through payroll contributions which were matched by LAWPRO.

As a result, Fanconi Canada will receive a cheque for $6,996. LAWPRO and its employees have generously supported Fanconi Canada through payroll contributions and other fundraising efforts for over 25 years.

11/21/2025

Save the date: We’re excited to bring the FA community together for the 2026 FA Family Retreat!

📅 June 20–24, 2026
📍 The Painted Turtle – Lake Hughes, CA
📝 Applications open January 1, 2026

It’s a chance to connect, learn, and enjoy time with people who understand life with FA. We hope to welcome our biggest group yet!

09/06/2025

At Fanconi Cancer Foundation, we care about the whole person—not just the physical challenges of FA, but the emotional and mental health challenges too.

A new study from FCF-funded researchers Dr. Kathleen Bogart and Dr. Megan Voss shares what it’s really like to live with FA as an adult. Through interviews and photos, participants described five common experiences:
➖ FA is all-encompassing
➖ Stigma and trauma take a toll on mental health
➖ Connection is bittersweet
➖ Barriers to mental healthcare
➖ A process of accepting the disease

The study shows how important it is to improve access to mental health providers who understand rare conditions like FA, and to expand social support—especially for people from minority backgrounds and outside of Western countries.

This is an important step toward making mental health resources more accessible for our community. 💙 📖 Read the study: https://shorturl.at/GxXkF