Sickle Cell Association of Ontario

05/10/2026

Dear Mama,

On this special day, the Sickle Cell Association of Ontario would like to extend our warmest greetings to all the amazing mothers out there. Your unwavering love, care, and support have been a source of strength and inspiration to us all.

We recognize the challenges that come with raising a child with sickle cell disease, and we appreciate your dedication and commitment to ensuring that your child receives the best possible care and support.

Today, we celebrate you and all the sacrifices you have made to ensure the well-being of your family. We hope that this Mother's Day brings you joy, happiness, and a sense of fulfillment in all that you do.

Thank you for being a part of our community, and we wish you a Happy Mother's Day!

Sincerely,

Ulysse Guerrier�President/Director, Patient Support�Sickle Cell Association of Ontario

02/12/2026

A birthday celebration for a Warrior like no other.

Today, we honor Ulysse Guerrier, a true Warriors’ Champion, whose life has been a testament to courage, compassion and unwavering dedication. Born in Toronto, raised in Montreal, finally returning to Toronto, making it home. During those years, facing immense challenges, Ulysse learned how to stand tall, advocate, not only for himself but others. He would soon learn how important that skill was.

The journey that created the champion we all know today, started one afternoon when he went into the Sickle Cell Association of Ontario (SCAO) seeking assistance for himself and his late brother, only to have that turned around on him by Lillie Johnson who simply asked him what could he do for the SCAO and the sickle cell community.
From volunteering with The Canadian Sickle Cell Society at 16 to becoming a board member at 18, Ulysse’s journey has been one of relentless advocacy, education, and empowerment. He has served as Project Coordinator at TAIBU Community Health Centre with a focus on Sickle Cell Disease, co-founded the UJIMA Sickle Cell Emergency Fund, shares the story of Warriors around the world, including his own through his YouTube channel “Our Sickle Life”, and serves the SCD community in Ontario as both the Director of Patient Support and as President of the Sickle Cell Association of Ontario.

Ulysse embodies patience, kindness, and leadership. He faces his own challenges with grace, yet he always finds the time and energy to lift others, raise awareness and fight for better care and recognition for Sickle Cell warriors everywhere. His vision—to bring Sickle Cell Disease into the mainstream—continues to inspire all of us who have the privilege to know him.

On this milestone birthday, we celebrate you, Ulysse, an advocate, a mentor, a friend, and of course The Warriors’ Champion. Thank you for standing for others at all costs, for your tireless advocacy and for showing what it truly means to lead with heart.

Happy 50th Birthday,
Ulysse Guerrier – The Warriors’ Champion

01/30/2026

Dear SCAO Family,

I’m writing to personally remind you about an extremely important Community Town Hall on Bill S-201, hosted by the Sickle Cell Disease Association of Canada (SCDAC) in collaboration with the Sickle Cell Association of Ontario (SCAO), alongside Michael Coteau, sponsor of the bill in Parliament.

Our presence matters. Our voices matter. Our health depends on it.

This Town Hall is a critical moment for the sickle cell community. MP Coteau needs to see and hear directly from us — patients, families, caregivers, and allies — about the real-life impact sickle cell disease has on our lives. We must show that we care about our health, our future, and the urgent need for Bill S-201 to pass NOW.

We cannot afford to wait.
The time is now.
We are close to the finish line — and we need you to help us cross it.

⸻

📅 EVENT DETAILS

Date: February 7, 2026
Time: 10:00 a.m. – 2:30 p.m.
Location: 1250 Markham Road, Scarborough
Venue: Global Kingdom Ministries

⸻

👉 REGISTRATION IS REQUIRED

Please take a moment to register. Registration helps us properly plan seating and food for all attendees.

🔗 Register here: https://bit.ly/BillS201TownHall-Ontario

⸻

This Town Hall is about you, your lived experience, and the future of sickle cell care in Canada. Let’s show our elected officials that our community is united, informed, and demanding action.

Please attend. Please register. Please share.

We are counting on you.

Looking forward to seeing you there,

Warm regards,
Ulysse Guerrier
President, Sickle Cell Association of Ontario (SCAO)

Welcome! You are invited to join a Townhall on Bill S-201. After registering, you will receive a confirmation email about joining the event.

01/13/2026

📣 COMMUNITY ANNOUNCEMENT – TOWN HALL ON BILL S-201 📣

The Sickle Cell Disease Association of Canada(SCDAC),in collaboration with its Ontario provincial member, the Sickle Cell Association of Ontario, SCAO warmly invites our community to an important Community Town Hall on Bill S-201, hosted with Michael Coteau, sponsor of the bill in the House of Commons.

This Town Hall is a critical opportunity for people living with sickle cell disease, families, caregivers, clinicians, researchers, and community leaders to come together, learn about Bill S-201, and understand how this legislation can improve care, research, and outcomes for our community across Canada.

🗣️ Why this matters:�This Town Hall creates a space for MP Coteau to hear directly from people with lived experience—patients, families, and care providers—about the real-world impact of sickle cell disease. Your voices are essential to strengthening and advancing Bill S-201 so it reflects the true needs and priorities of our community.

📅 EVENT DETAILS
🗓️ Date: February 7, 2026�⏰ Time: 10:00 a.m. – 2:30 p.m.�📍 Location: 1250 Markham Road, Scarborough�🏛️ Venue: Global Kingdom Ministries

👥 Who Should Attend
✔️ People living with sickle cell disease�✔️ Families & caregivers�✔️ Clinicians & researchers�✔️ Community leaders & advocates�✔️ Policymakers & allies
✨ The program will include a featured presentation by a physician-researcher, followed by an interactive discussion with the community and invited guests.

👉 REGISTRATION IS REQUIRED�Please register to confirm your attendance:�🔗 https://bit.ly/SCD-TOWNHALL-Bill-S-201

💬 Your voice matters.�This Town Hall is about you, our community, sickle cell advocacy, and collective action toward change.

Please share this post widely and help us ensure strong community representation. We look forward to seeing you there!

With gratitude, determination, and hope,

Ulysse Guerrier
President / Director of Patient Support
Sickle Cell Association of Ontario

01/02/2026

💫 Happy New Year, SCAO Family! 💫

As we step into this new year, I want to take a moment to send each of you love, strength, and hope. May this year bring you better health days, renewed energy, peace of mind, and moments of joy—no matter how big or small.

Please remember: you are not alone. This community stands with you, walks with you, and supports you. We are one phone call, one message, one check-in away—always.

Thank you for your courage, your resilience, and for showing up for one another. Here’s to a new year filled with support, understanding, and continued strength together.

With warmth and solidarity,

Warm regards,
Ulysse Guerrier
President & Director of Patient Support
Sickle Cell Association of Ontario

12/02/2025

🌟 Giving Tuesday – Together for Sickle Cell Warriors 🌟


December is a season of giving—and in the Sickle Cell community, giving takes many powerful forms.

As we close out the year, we’re reminded that generosity isn’t defined by one moment or one type of contribution. It lives in every Warrior fighting through pain with courage, every caregiver who stays by a bedside, every advocate raising their voice for change, every volunteer offering their time, every person who donates financially, and every blood donor who helps save a life.

It’s in every nurse who understands the urgency of Sickle Cell pain, every physician who listens and acts, every researcher pushing for better treatments, every educator teaching awareness, and every community member who chooses compassion over stigma.

Giving also shows up in simple but impactful acts—
🔴 Sharing a post
🔴 Encouraging someone to donate blood
🔴 Starting a conversation about Sickle Cell Disease
🔴 Supporting health equity and patient rights
🔴 Helping ensure no Warrior suffers in SILENCE

This December—and on this Giving Tuesday—we honour every act of generosity that lifts our community.
Thank you for showing that giving is more than a season.
🩸 For us, it’s a commitment. A movement. A way of living.

❤️ Support the Sickle Cell Association of Ontario today:
👉 Donate here: https://bit.ly/Donate2SCAO

www.sicklecellon.ca

Together We can Make a Difference For 40 years, the Sickle Cell Association of Ontario has empowered people with Sickle Cell Disease, raising awareness through advocacy, education, fundraising, and outreach. Donate Now Learn More Who We Are Our Legacy of Service and Advocacy For over 40 years, the S...

08/15/2025

Dear Sickle Cell Community,

After 103 years of trailblazing, educating, advocating and standing up for what is right, the phenomenal human being known as Miss Lillian Johnson, will be making her journey home. Join family, friends, colleagues and those who have been impacted by her tireless work on Wednesday August 20th, 2025 at 11:30 AM at the Highland Funeral Home – Markham Chapel. The chapel is located at 10 Cachet Woods Court, Markham ON.

She will be buried at Highland Hills Memorial Gardens located at 12492 Woodbine Avenue, Gormley ON L0H 1G0 which is approximately 15 minutes from the chapel. After her interment, there will be a reception at the Highland Funeral Home.

We ask that those who plan to attend in person to be mindful of time, seating and those who may be differently abled.

For those who are unable to make it in person, you can view Miss Lillie’s Home Going on YouTube at https://bit.ly/LJGoingHome2025