Colsen Langlais: Community Fund for Muscular Dystrophy Canada

04/07/2026

Dinking for Duchenne 2026: Tournament Results & Photo Gallery

The memories are in, and our hearts are still overflowing! As promised, here are the photos from this past Saturday’s 2nd Annual Dinking for Duchenne Pickleball Tournament in support of Muscular Dystrophy Canada. Looking through these pictures, it’s clear that the energy and spirit on the courts were truly something special.

We want to send a massive thank you to all the women’s teams who joined us. Your participation is about so much more than just a game; these types of events are what create real awareness and provide hope for families like ours living with Duchenne Muscular Dystrophy. A huge thank you as well to our incredible family, volunteers, and friends who worked behind the scenes, your continued support is the foundation of everything we do. We were also particularly honored to have this year’s Walk & Roll Ambassador, Jeff Sparks from the Fundy Chapter, Muscular Dystrophy Canada, join us to show his support!

A Massive Thank You to Our Sponsors

This event was a success because of the generosity of our local partners. We are beyond grateful to:

Vito’s Rothesay

Lenster Trophies

Imperial Theatre

Tom McHugh

Alex and Lilly’s

Pickleball Saint John

Carleton Community Centre

KV Pickleball

Signs Plus

The Final Tally

Between team registrations, our canteen, the 50/50 draw, and general donations, we are thrilled to announce that we raised a total of $1,579 at the tournament! This brings Colsen’s Walk & Roll Campaign to an incredible $2,294 so far!

What’s Next?

The momentum isn't stopping here! We will be hosting a raffle this year to keep the support going. Stay tuned to this page for more details on the amazing prizes and where you can purchase your tickets!

Support the Journey

For anyone who would like to donate directly to our campaign, every bit of support helps us reach our goal. You can contribute through the link below:

https://muscle.akaraisin.com/ui/WalkRollMDC26/p/ColsenLanglaisMDCanada

Thank you all for turning a day of sport into a lifetime of impact. We can't wait to do it all again next year! 💪✨

04/04/2026

What an incredible day for the 2nd Annual Dinking for Duchenne Pickleball Tournament!

Our hearts are so full, and we are thrilled to announce that thanks to our amazing sponsors, dedicated volunteers, and every single participant. To our players: you are the reason this event is such a success, and seeing this community rally for our son Colsen and every family living with Duchenne Muscular Dystrophy means the world to us.

Your energy and generosity turned hope into real action today, with 100% of these proceeds going directly to Muscular Dystrophy Canada through Colsen’s Walk & Roll Campaign. We have so many great memories to share, so please stay tuned as we will be uploading all the tournament pictures this Tuesdsy. Additionally, all individual donations collected today will be added to the campaign page on Tuesday as well.

We also have an unclaimed 50/50 prize, so please check your tickets—the winning number is in the photo below! We hope everyone has an amazing Easter weekend with their loved ones. Thank you all from the bottom of our hearts for being part of this journey with us; we already can’t wait for next year! 💪

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04/02/2026

2nd Annual Dinking for Duchenne Pickleball Tournament

This Saturday is about more than just the game; it’s about awareness, connection, and hope for Colsen and every family like ours living with Muscular Dystrophy. We are so incredibly fortunate to have such a supportive community behind us. To all our participants: you are the reason this event is a success, and we are so grateful to have you on the courts with us!

A Heartfelt Thank You to Our Supporters

We want to extend a massive shout-out to the incredible organizations and individuals who donated their time, space, and items to make this tournament a success again this year. We truly couldn't do this without the generosity of:

Vitos Rothesay

Lenster Trophies

Imperial Theatre

Tom McHugh

Alex and Lilly’s

Pickleball Saint John

Carleton Community Centre

KV Pickleball

Signs Plus

Beyond the competition, we have plenty planned to celebrate your support!

Commemorative Gifts: Every participant will receive a special item to commemorate being a part of this year's tournament.

Medals: We will be awarding medals to the top three teams in each category.

Random Prize Draws: Keep an eye out! We will be drawing for prizes randomly throughout the entire day.

Fuel & Fun: Our canteen will be fully stocked to keep you fueled, and we will be selling 50/50 tickets—so come ready to play and win!

Making an Impact:

We are proud to share that 100% of the proceeds from this tournament go directly to Muscular Dystrophy Canada through Colsen’s Walk & Roll Campaign. These funds are vital in supporting life-changing research and essential family services.

Support the Journey:

If you’d like to contribute or learn more about why this mission is so close to our hearts, please click the link below. Reading about Colsen’s Journey helps shine a light on why this organization is so important to us and so many other families:

https://muscle.akaraisin.com/ui/WalkRollMDC26/p/ColsenLanglaisMDCanada

Thank you for helping us turn hope into action! See you on the courts! 💪

02/17/2026

Walk & Roll Update: Goal Smashed! 🎒
Next stop: Our Annual Pickleball tournament! 🏆

There is something so special about the way this community rallies together.

We wanted to start by sharing a huge thank you to everyone who supported Thatcher’s early fundraising efforts. His goal was simple: he wanted to make sure he raised enough to get his brother, Colsen, an MD Canada backpack for school next year. Thanks to your incredible kindness, Thatcher didn’t just meet his goal, he more than doubled it. We have already raised $650 because of your generosity, and seeing Thatcher’s pride in helping his brother has been a moment we will never forget 💚

With that momentum behind us, we are officially turning our focus to the court. We are so excited to announce the 2nd Annual Dinking for Duchenne Pickleball Tournament, taking place on Saturday, April 4th, at the Carleton Community Center.

This women's tournament is more than just a day of sports; it is awareness and hope for Colsen and every family like ours living with Muscular Dystrophy. We are inviting women from across the community to join us for a day of competition and connection. We will have prizes for our top three teams in each category, and a canteen stocked to keep everyone fueled.

Every dollar raised through this tournament goes directly into Colsen’s Walk & Roll campaign, supporting Muscular Dystrophy Canada’s mission to fund vital research and family services. You can follow our progress or contribute to the journey here:

https://muscle.akaraisin.com/ui/WalkRollMDC26/p/ColsenLanglaisMDCanada?fbclid=IwY2xjawQBecNleHRuA2FlbQIxMQBzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeUOuQpH03EJkJ-dXEymvT_3VdkD-NlHyVoLoTVel82qzLrp3C9u1rdm3g2Ds_aem_6-zoZqS2l_FTtri0rlfaWw

We also plan on holding a raffle this year and will be announcing those details later on. If you would like to donate to the tournament or the raffle, please message us at [email protected].

Thank you for standing with us, for cheering on our boy, and for helping us fight rare disease with ferocity. We can’t wait to see you on April 4th.

01/28/2026

Thatcher’s Birthday Wish 🎊

​Thatcher’s birthday is coming up on January 30th, and he has a very special mission in mind. He wants to kickstart our 2026 Walk and Roll for Muscular Dystrophy Canada by raising $300 before February 28.

​He isn't doing this for himself. If he hits his goal, he earns an official MDC bookbag, and he is determined to give it to Colsen so his little brother can start school this fall with a boost of confidence and a reminder of the community behind him.

​It is about more than a bag; it is about a big brother looking out for his little brother and supporting a cause that means everything to our family.

​If you would like to help Thatcher reach his goal for Colsen, you can donate here:

https://muscle.akaraisin.com/ui/WalkRollMDC26/p/ColsenLanglaisMDCanada

​Thank you for helping Thatcher show Colsen just how much he is loved!

It’s time for the Walk & Roll again! Since June 2024, the pages of our lives have looked different than we ever imagined, but we aren't just character

11/10/2025

Accessible deck, here we come! ♿️

11/08/2025

Muscular Dystrophy Canada family bowling night for the Fundy Chapter, Muscular Dystrophy Canada 🎳

10/02/2025

Such a huge win! 🎉

We are thrilled to announce that Health Canada has officially approved AGAMREE® (vamorolone), the first and only approved medicine for Duchenne Muscular Dystrophy (DMD) in Canada.
This is more than a regulatory win; it’s a turning point for families across the country.

🔗 https://www.kyepharma.com/press/health-canada-approves-agamree-vamorolone-as-the-first-treatment-for-duchenne-muscular-dystrophy-in-canada

Why this matters:

➡️ DMD is a type of muscular dystrophy that is rare, causes weakness and a wasting of the muscle due to the absence of a protein called dystrophin. If the body is lacking dystrophin, muscle cells become damaged, and movements that are considered natural, such as getting up from the floor and walking, become challenging. Individuals with DMD typically lose the ability to walk in their early teens and have increasing cardiac and respiratory difficulties. Bone thinning and scoliosis are also common for those with Duchenne.

➡️ AGAMREE® is granted approval under Health Canada’s priority review process, which means it was fast-tracked due to its potential to deliver real impact.

➡️ In clinical trials, it showed comparable benefits to standard corticosteroids but with fewer side effects on linear growth, bone health, and behaviour.

➡️ According to our very own database, there are more than 800 boys and young adults in Canada living with DMD, and many could benefit from this treatment.

What’s next:
AGAMREE® is not yet commercially available, but work is already underway to make it accessible in Canada as soon as possible. This approval doesn’t just represent a new option; it carries hope that future treatments will find an even stronger footing in Canada.

Muscular Dystrophy Canada has long championed research and advocated for better treatment options. We supported the review process for AGAMREE and amplified the voices of our community to highlight the urgent need for safer, more effective therapies. This approval reflects years of persistence and collaboration that have broken down barriers through research and discovery.

Let’s celebrate this moment together and keep pushing forward until every Canadian living with Duchenne has access to the treatments and supports they need.

09/28/2025

Happy birthday to Colsen, he is 5 today! 🥳

09/26/2025

Another great visit to Stan Cassidy. This was his brother Thatcher's first time going there with Colsen and he said "I feel better knowing he gets to come here for his appointments".

09/03/2025

Thank you to the Saint John Regional Hospital for making sure Colsen was occupied and happy while getting his boots on today 🩺

08/27/2025

Save the date for the upcoming MD Canada retreats! 🗓

Save the Date for our upcoming Family and Caregiver Retreats!
Mark your calendars for a weekend filled with connection, relaxation and entertainment.

Atlantic Canada Family Retreat:
Dates: October 24 - 26, 2025
Location: Camp Brigadoon, 1650 N River Rd, Ayelsford, NS B0P 1C0

British Columbia Caregiver Retreat:
Dates: October 17 - 19, 2025
Location: Harrison Hot Springs Resort 100 Esplanade Ave, Harrison Hot Springs, BC V0M 1K0

Stay tuned for registration details.

🔗 https://muscle.ca/services-support/personal-support-program/family-and-caregiver-retreats/