Canadian SADS Foundation

Canadian SADS Foundation Support and advocacy for inherited cardiac rhythm conditions & sudden cardiac death in the young.

Summer sports season is here ☀️🏃As practices, camps, and outdoor activities ramp up, preparation matters just as much as...
05/29/2026

Summer sports season is here ☀️🏃

As practices, camps, and outdoor activities ramp up, preparation matters just as much as performance.

A few important reminders before getting back into activity:

• Build intensity gradually
• Stay hydrated
• Avoid pushing through extreme exhaustion
• Pay attention to symptoms during exercise
• Know where the nearest AED is located

Being prepared helps all of us stay active safely all summer long!

No matter where you are in your journey, you do not have to navigate it alone.Whether you have questions, concerns, need...
05/28/2026

No matter where you are in your journey, you do not have to navigate it alone.

Whether you have questions, concerns, need support, or simply want someone to listen, The Canadian SADS Foundation is here for you. Every conversation matters, and questions are always welcome.

Reach out anytime through DM, email, or phone. We are always happy to connect.

05/27/2026

When Patients Help Design Research, Healthcare Improve.

No lab coat required. Just lived experience and a seat at the table.

Anne Simard shares how patient partners have rewritten study protocols, redesigned unusable wearables, and told engineers their "sexy" new tech was a disaster. She also tackles the awkward question: should patients get paid for their expertise?

Because when patients help design research, outcomes improve for everyone.

Watch the full episode and follow us on our socials!
Facebook - https://tinyurl.com/CanadianSADSFacebook
YouTube - https://tinyurl.com/CanadianSADSYouTube
Instagram - https://tinyurl.com/CanadianSADSInstagram
Spotify - https://tinyurl.com/CanadianSADSSpotify
Apple - https://tinyurl.com/CanadianSADSApple
Amazon - https://tinyurl.com/CanadianSADSAmazon

This summer, YOUR fundraiser could make a LIFESAVING impact ☀️❤️ Whether it’s a…⛳️ Sports tournament🌭 BBQ👟 Fitness chall...
05/22/2026

This summer, YOUR fundraiser could make a LIFESAVING impact ☀️❤️

Whether it’s a…
⛳️ Sports tournament
🌭 BBQ
👟 Fitness challenge
🎂 Birthday fundraiser
Or more…

Supporting the Canadian SADS Foundation does NOT have to be complicated to make a difference. 🫵

💸 Whether you raise $50 or $5,000, every fundraiser helps raise awareness, support families, and strengthen the SADS community across Canada.

📍This summer, turn something you already love doing into something meaningful! 💛

Contact us at:
📧 [email protected]
📞 613-558-7237

Let’s work together to make YOUR event a success! 🎉

But wait...there’s more! We are also excited to introduce Lynn Hussayn as a new summer intern! She will be working as a ...
05/18/2026

But wait...there’s more! We are also excited to introduce Lynn Hussayn as a new summer intern! She will be working as a Public Health Consulting Intern at the Canadian SADS Foundation for the next few months.

Lynn just finished her first year in the Masters of Public Health program at McGill. She is completing her practicum with us and will be helping us modernize our materials based around patient needs, and expand these to our French audience.

Please join us in welcoming Lynn!

We are excited to introduce Katie Lin as one of our new summer interns! She will be working as our Strategic Communicati...
05/15/2026

We are excited to introduce Katie Lin as one of our new summer interns! She will be working as our Strategic Communications Coordinator for the next few months.

Katie is graduating from McMaster University with a degree in Health Sciences and a Concurrent Certificate in Applied Ethics and Policy. She will be helping us manage our social media accounts and create fun promotional materials.

Please join us in welcoming Katie!

05/12/2026

We have a very special episode this week of Let's Talk SADS Live. Our host Heather is talking with someone she's known her whole life: her older sister, Meredith.

They share a lot. Memories, jokes, the occasional family fight. And now an inherited heart condition called ARVC.

Meredith watched Heather get her diagnosis first. Years went by, then she got the same news herself. So they sat down to talk about what that's actually like. The hard conversations with family, the things people get wrong, and what it means to go through something like this with your sister in your corner.

Just two sisters, one conversation, no script.

Watch the full episode and follow us on our socials!
Facebook - https://tinyurl.com/CanadianSADSFacebook
YouTube - https://tinyurl.com/CanadianSADSYouTube
Instagram - https://tinyurl.com/CanadianSADSInstagram
Spotify - https://tinyurl.com/CanadianSADSSpotify
Apple - https://tinyurl.com/CanadianSADSApple
Amazon - https://tinyurl.com/CanadianSADSAmazon

05/05/2026

There's something really special about the moment you finally meet other kids who just understand what you're going through. For Amelia, that moment happened at Campfire Circle .

She spent years being the only one she knew with CHD. Then one summer, she walked into camp and realized she wasn't alone anymore. No awkward explanations, no feeling different. Just a bunch of kids who all live the same life she does.

That feeling of excitement and relief is what this clip is all about. It's joyful, it's hopeful, and it's a reminder that finding your people can change everything.

Watch the full episode and follow us on our socials!

Facebook - https://tinyurl.com/CanadianSADSFacebook
YouTube - https://tinyurl.com/CanadianSADSYouTube
Instagram - https://tinyurl.com/CanadianSADSInstagram
Spotify - https://tinyurl.com/CanadianSADSSpotify
Apple - https://tinyurl.com/CanadianSADSApple
Amazon - https://tinyurl.com/CanadianSADSAmazon

04/28/2026

You wouldn't expect a 16 year old with Coronary Heart Defect (CHD) to say a roller coaster is one of her favorite stories, but here we are!

Amelia was born with Double Outlet Right Ventricle and has had three open heart surgeries, but ask her if she'd trade her CHD for a "normal" life, and her answer might surprise you.

In this uplifting conversation, Amelia opens up about finding her people at Campfire Circle, advocating for other cardiology patients through the Chameleon app, and why she actually sees her heart condition as something that made her life better, not worse.

Amelia's story is proof that resilience looks a lot like joy.

Watch the full episode and follow us on our socials!

Facebook - https://tinyurl.com/CanadianSADSFacebook
YouTube - https://tinyurl.com/CanadianSADSYouTube
Instagram - https://tinyurl.com/CanadianSADSInstagram
Spotify - https://tinyurl.com/CanadianSADSSpotify
Apple - https://tinyurl.com/CanadianSADSApple
Amazon - https://tinyurl.com/CanadianSADSAmazon

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