Canadian SADS Foundation

Canadian SADS Foundation Support and advocacy for inherited cardiac rhythm conditions & sudden cardiac death in the young.

🫂 To the dads who keep our families beating strong, thank you. This Father’s Day, make heart health part of the celebrat...
06/19/2026

🫂 To the dads who keep our families beating strong, thank you. This Father’s Day, make heart health part of the celebration. ❤️

‼️ Make sure to stay hydrated, know where the nearest AEDs are, pay attention to symptoms, and stay safe this Father’s Day.

Happy Father’s Day!

06/18/2026

💬 “There’s an incredible amount of guilt that comes with being a parent when your children are diagnosed with HCM.”
 
Tim is a husband, father, former marathon runner, and long-time hypertrophic cardiomyopathy (HCM) patient from Halifax, Nova Scotia, whose journey spans decades of symptoms, misdiagnoses, heart failure, multiple ICD implants, and open-heart surgery.
 
His story highlights the struggles of being a parent with HCM, the importance of genetic testing, self-advocacy, and persistence in seeking answers, while sharing the realities of living with an often invisible heart condition.
 
If Tim’s story resonates with or inspires you, we have more interviews coming up throughout the month so we can help you:
 
Think cardiomyopathy,
Act on the signs,
and Know the symptoms.
 

06/17/2026

💬 “There’s a lot of moms out there kind of struggling with the same issues.”

🩺 Dr. Danna Spears is an electrophysiologist at the Peter Munk Cardiac Center in Toronto.

📌 In this episode, we unpack the challenges, exploring how inherited cardiomyopathies can impact women at different stages of life—from diagnosis and treatment to pregnancy, motherhood, and menopause—and discuss the importance of personalized care, self-advocacy, and community support.

Watch the full episode and follow us on our socials! Link in bio. 🔗

‼️ Life with cardiomyopathy is NOT defined only by limitations.But it does require adapting to a new reality. Those with...
06/16/2026

‼️ Life with cardiomyopathy is NOT defined only by limitations.

But it does require adapting to a new reality. Those with cardiomyopathy face unique challenges—many of which are often beyond physical.

🫵 Remember that you are a person behind your diagnosis.

Think cardiomyopathy.
Act on the signs.
Know the symptoms.

06/15/2026

💬 “We only get one life.”

🙅‍♀️ After diagnosis, Linda refused to let HCM dictate how she wanted to live her life.
‼️ You don’t have to put your life on hold because of one diagnosis.

📖 We’re here to share stories with you that prove others have continued living fulfilling lives.

You are more than your condition. 😌

💭 Think cardiomyopathy.
⏰ Act on the signs.
🤔 Know the symptoms.

06/12/2026

💬 “One day I was just running a normal route that I normally ran and I couldn’t do it anymore.”

🙋‍♂️ Tim is a husband, father, former marathon runner, and long-time hypertrophic cardiomyopathy (HCM) patient from Halifax, Nova Scotia, whose journey spans decades of symptoms, misdiagnoses, heart failure, multiple ICD implants, and open-heart surgery.

📖 His story highlights the importance of genetic testing, self-advocacy, and persistence in seeking answers, while sharing the realities of living with an often invisible heart condition.

‼️ If Tim’s story resonates with or inspires you, we have more interviews coming up throughout the month so we can help you:

Think cardiomyopathy,
Act on the signs,
and Know the symptoms.

⁉️ “Where do I go from here?”🪜 Once you’ve been diagnosed with a cardiomyopathy condition, there’s a few steps you shoul...
06/11/2026

⁉️ “Where do I go from here?”

🪜 Once you’ve been diagnosed with a cardiomyopathy condition, there’s a few steps you should take.

🙅 Cardiomyopathy does not mean you are incapable of living a fulfilling life! Do NOT let your diagnosis define you.

We’re here for you too! Feel free to reach out to us via…
📧 Email: [email protected]
📞 Phone number: +1 (613) 558-7237

Found this helpful? We’re sharing more resources like this throughout the month to help you:

💭 Think cardiomyopathy,
⏰ Act on the signs,
🤔 Know the symptoms.

06/10/2026

💬 “There’s often this assumption that [a woman’s] cardiac risk is very low.”

🩺 Dr. Danna Spears is an electrophysiologist at the Peter Munk Cardiac Center in Toronto. She will be the first to tell you: women with these conditions aren’t just smaller versions of men. And the questions women ask — about longevity, pregnancy, and living a full life — deserve answers that actually fit.

📌 In this episode, we unpack these challenges, exploring how inherited cardiomyopathies can impact women at different stages of life—from diagnosis and treatment to pregnancy, motherhood, and menopause—and discuss the importance of personalized care, self-advocacy, and community support.

Watch the full episode and follow us on our socials! Link in bio. 🔗

06/09/2026

💬 “The only person that’s really going to fight for you is yourself.”

Linda is a woman living with hypertrophic cardiomyopathy (HCM) who refused to let her diagnosis define her life. After years of being told her symptoms were simply due to age, weight, or being out of shape, she persisted in seeking answers and advocating for herself until she received the care she needed. 🙋‍♀️

‼️Something bothered her, so she stood up for herself and from there, found the root cause.
We want to make sure you 🫵 know when to do the same.

💭Think cardiomyopathy.
⏰ Act on the signs.
🤔 Know the symptoms.

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Ottawa, ON

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