01/28/2026
Over the years I have shared a variety of information in hopes to increase awareness about the complexity of brain related disorders.
I realize not everything posted here is going to be something of value to everyone. But I can’t tell you how much I truly hope I am helping by sharing the information I feel is valuable.
My experiences began early on when I witnessed my step dad having a grand mal seizure (now called tonic clonic seizures). I was only 4 years old. Little did I know then, by 29 years of age I would also start having tonic clonic seizures.
Ironically I started advocating for epilepsy in public school, winning the public speaking competition for my school in grade eight. When I won, I went on to compete in the London city competition. Unfortunately though, my epilepsy speech didn’t place in the top three. But it was the 1970’s so I’m not really surprised. I was also chosen valedictorian that year. When I think about that now, it’s probably good we don’t always know the future. My valedictorian speech would’ve been slightly different then for sure lol
On the positive side, my knowledge base regarding neuroscience & seizure disorders has grown a lot. When I developed my own uncontrolled seizure disorder I joined the local epilepsy support community & continued to learn, finding myself drawn to all the many stories & intrigued to understand the different variables from one situation to others that are related. Because my own diagnosis is complicated & I have family members who manage seizures, as well as have lost family & friends who had seizure disorders I am driven to research everything medically related. My husband says I should be a doctor. But at my age & the cost for education that’s a pipe dream lol.
However I do have some accomplishments. I have wrote & shared newspaper articles about epilepsy, spoke to groups at factories, banks, nursing homes, schools, golf tournaments & various charity events. As well as being interviewed on radio & tv.
When I created Epilepsy Awareness 2009 I had a personal level understanding of chronic disorder challenges & understood the physical, emotional, & financial complications that often arise. Average day to day challenges are compounded, making life extra challenging.
I have shared my own information plus a variety of public information concerning challenges with health related issues; diagnosis, various neurological disorders, medications, treatments, medical professionals, support, events & stories from others online, & more.
I also shared a special letter in 2013 from my husband, Steve, when he had wrote his views about our story, our life situation. I just read it the other day & thought it was worth sharing again.
I am forever thankful Steve is my rock & I am so lucky we found each other ❤️
