Ollie's Journey

Ollie's Journey XLH/ADHR affects the kidneys and bones: can cause severe pain, muscle weakness, bone deformities and fatigue. condition/treatment are lifelong.

bones are weak and soft and have increased risk of fracturing or breaking.

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Grande Prairie, AB

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Trying to educate the public on Autosomal Dominant Hypophosphatemic Rickets

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Help Support Oliver

Oliver has recently been diagnosed with a very rare and genetic disease called Autosomal Dominate Hypophosphatemic Rickets (ADHR). This disease affects the kidneys and bones and can cause Oliver to have severe pain, muscle weakness, bone deformities and fatigue

We hope to use this page so the public, friends and family can follow Oliver’s journey with ADHR as well as educating on this rare disease.

We are hopeful that with donations and fundraisers we will be able to get some help with his medical expenses as insurance will not cover his medication and it can be quite expensive especially as he ages. We will also be making many trips to and from Edmonton, Alberta to see specialists and to have continuous tests done at the Stollery Childrens Hospital.

Donations can be made by e-tranfer : [email protected]