25/04/2023
Study tour to Chennai (Empower Conference)
Self reflection
The study tour has opened my eyes to vast possibilities and enthusiasm within me to take simple yet broader initiatives in my settings through my prior learning and experiences.From listening to experienced leaders and champions of disabilities to visiting the places where the disabled are groomed to be abled had given me a satisfying answers to my long unanswered questions that google and readings couldn't. I was overjoyed to picture my patients with every potential AT solution witnessed but was saddened by the reality of difficulties in procuring the AT devices and ignorance of its importance in the country.
The first day of the conference had all the exciting workshops but Sadly all were scheduled at the same time.I could attend to Prof. Shovan's workshop on Designing of Frugal Devices to enhance the functionality of a compromised hand.I was amazed to realize how simple yet impactful solutions can be created through indigenous and locally available resources.The lessons learned in the workshop is something that i can see myself doing in my day to day clinical work . I am pleased to receive the positive responses from the professor and hopeful to receive the guidance in initiating the plans for designing the frugal hand devices in my setting for the pediatric population. I am touched and grateful to you for feeling my difficulties of being a lone learner and practitioner and introducing me to prof Shovan.Having him as a guide and mentor would be a dream for every learner.
Attending the AAC workshop refreshed my knowledge on the SETT framework used for designing and fitting AT devices and also cleared my misconception on using AAC.I Learned more about the AAC and the role that the different professionals play in customizing the AAC according to the user needs.The importance of AAC and its idea has not yet reached our country and is still considered a last resort with a negligible number of its users.I really hope to collaborate with the SLPs in the hospital to Introduce a successful AAC programs for childrens enrolled for interventions.
The keynote presentation and invited talks in the conference took me into new dimensions of assistive technology from the innovation,marketings and advancement to users feedback and testimonies.It has enlightened me about the significant roles of every stakeholder from policy makers to the end users and their collaborative approach in building an inclusive society and mainstreaming the PWDS which is much needed in a country like ours .I couldn't help myself from envying the, AT facilities,Expertise,mainstreaming programs and the attitude of PWDs presented in the conference.It has driven my imagination of how accessible and better a place would be for the disabled, if things like attitude,designs,policies and collaborations from the conference can be replicated everywhere.
The visit to Viidhya sagar and museum of Possibilities brought sense and life to what I have read and learned until now.To see and feel how things are actually done in real is something i have always longed for.From early intervention to the independent living and community integration , adaptation,compensation,modification and use of AT,the two places by itself resonates a success stories of diabled being no more disabled.I was astonished about how the institute are carefully structured and organized with every attention to the accommodating diverse kind of disability.The early Intervention session at Vidyasagar organized by different rehabilitation profession was a simple manifestation of a efficient multidisciplinary approach towards achieving a common goal set for every children with special needs. This is something I wish to make it happen at the hospital I work at as the current practice of rehabilitation professionals working in isolation is inefficient in meeting the goals of functional outcome of the CWDs.
The museum of Possibility would be dream come true for every disabled individual with every possible solutions for their disability.The variety of assistive technologies from low technology to high technology across various life domains of( Live, Work and Play ) and range of disability build with the element of universal element really define its possibility.To have one of its kind at our country would serve as a model for all the stakeholders working in the field of disability and diabled people themselves for independent living and mainstreaming PWDs.Exploring the low tech devices have provided me with an idea of simple adaptation and designs that i can adopt as well as encourage the local carpenters to make.
I was stunned to witness 80+ AT product exhibitions and innovation aimed at problem solving the challenges of PWDs.I was glad to connect with few of those startup organizations which were of my field of interest and those i thought would feasible in our country.I am motivated towards studying each of those products in the market in details to effectively suit the patient i come across from different walk of life.
The visit to QUEST learning center was something new and different for me. The idea of self-directed learning and designing one's own learning journey is truly revolutionary and a great initiative towards pursuing an educational experience independently with just the right involvement of parents and teachers and without the curriculum restriction and distinct subject and textbook boundaries.Applying the same concept of curiosity driven learning in the field of pediatric rehabilitation would be an asset towards achieving functional outcomes.The displayed works and creativity of children put together under particular themes of kindness of children at Kindness Carnival portrayed significant role the children play in humanity and their special way of spreading kindness. Observing the little children proudly operating stalls of their self made products reflected their creativity and excitement of having been given a chance to take part in a larger platform.
Visit to Chetena ARM Library is one of a kind that houses adaptable books for any child with a print disability.From seeing the books , I realized how the handcrafted context based story books would serve as an incredible way of expression , learning fundamental skills and concepts and carving an imagination for print disabled as described by Dr.Namita in the EMPOWER conference.The exciting stories of different themes coupled with the fun tactile and visually rich materials and activities used for storytelling can be a fun way of learning and ingraining the lessons learned.
As i Listened to people who have never let their disability take charge of their life and saw them navigate successfully through daily activities,I aspired to plant the same attitude and make the same changes in every disabled person I come across in my practice.
I am bombarded with multiple ideas of implementing many programs from the study visit and but deprived of ideas of initiating it.i am really interested initiating the following programs:
Multidisciplinary early intervention session similar to Vidhya sagar at National Referral Hospital
Museum of Assistive Technology at National Referral Hospital
Designing frugal hand devices
Driving interest of SLPS towards AAC
Designing adaptive devices with the help of local carpenters
Designing few tactile books to be kept in my clinics
Having a collection of simple adaptive devices made locally.
Doing it alone is impossible and therefore would require the inputs of my colleagues,Agency and ministry as well partnership outside the country ,particularly in the area of assistive Technology.
What could be some next steps with support and partnership?
Assistive Technology has entered the field of disability and started to make lives better long ago but it has not yet made its way to our country, owing to lack of awareness,training professionals and acceptance of its usage in various sectors.
Bringing AT services to the country needs an introduction of proper channels of assessing the needs of users and procuring the right and legitimate AT products.This could work out through having an AT expert committee from within and outside country to asses the user needs and fit the right AT product as well as study the AT products.Partnering with well established AT company to ensure quality product and services are delivered.
Seeking the Partnership of Museum of Possibility and support from the Ministry of Health,Bhutan, in creating a museum of AT in the National Referral Hospital.Rehabilitation professions would be in a best position to propose the idea to MoH.
Designing and making adaptive equipment with the support from local carpenters.Supports from the experienced ones from outside would further aid in designing the prototype.
Dechen Tshomo
OT