Pgap 1

Pgap 1 Genetics disease awarness, support and information. https://ig.me/23AXx1aBunbasAP

Hi everyone, hope you’re doing well. Wete reaching out to ask for support for this GoFundMe. This cause is important and...
26/02/2026

Hi everyone, hope you’re doing well. Wete reaching out to ask for support for this GoFundMe. This cause is important and whether you can donate or simply share the fundraiser, every little bit helps and is greatly appreciated. Here’s the link:

Twenty-one children. A rare disease. A real chance. Emil… Jens Poessel needs your support for Support Breakthrough Therapy for Kids with ultrarare Disease

25/02/2026
"Charnice turning 3.After 2years that she was diagnosed with cp we did genetic testing because something was just not ri...
17/06/2023

"Charnice turning 3.
After 2years that she was diagnosed with cp we did genetic testing because something was just not right with her,even doctors didnt understand her behaviour. Genetics came back positive with mutation in PGAP1.We dont know much yet as we have to see the doctors again for consulting"

I would like to share this, it's something that I was given when Austin was small. Every country is beautiful, every chi...
16/06/2023

I would like to share this, it's something that I was given when Austin was small. Every country is beautiful, every child is beautiful, enjoy your journeys

Austin 9 and Abigail 7At the local community centreDiagnosed with pgap1 September 2020
15/06/2023

Austin 9 and Abigail 7
At the local community centre
Diagnosed with pgap1 September 2020

Our little Pgap1 unicorn just turned 1 in May! She is working on getting stronger and stronger! We are trying to get thi...
15/06/2023

Our little Pgap1 unicorn just turned 1 in May! She is working on getting stronger and stronger! We are trying to get this page easy to use for all families with Pgap1 kiddos so that we can easily communicate with each other. We also plan to invite all our doctors and researchers to better connect and update us all on research and best practices for our babies 💚

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