Muscular Dystrophy NSW

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Muscular Dystrophy NSW

MDNSW has been serving and supporting people with neuromuscular conditions, including Muscular Dystrophy, for over 50 years.

At Muscular Dystrophy NSW, we know you want to live the life you choose. To do that, you need information on your neuromuscular condition, support programs, NDIS services, and a community that gets you. The problem is, it’s hard to find other people who have your condition, and service providers who understand your specific needs. Which leaves you feeling even more alone and unsupported. We believ

e people with neuromuscular conditions deserve specialised support, and a community that understands them. We understand that a new diagnosis, or a change in your condition can make you feel anxious and alone. That’s why for over 60 years, we’ve connected people across NSW living with neuromuscular conditions to the support programs they want, and the community they need.

27/08/2026

MD Women’s Network: Floral Wonder Picnic 🌸

Wear your favourite florals and join us for a day out exploring the Royal Botanic Gardens with other women in the neuromuscular community.

Wander the gardens, capture photos among the blooms, then settle in for a picnic. With food and drinks provided, it's a chance to enjoy a beautiful day out, meet new people and catch up with familiar faces.

Past attendees describe Women's Network as: “an uplifting day of friendship, fun and meaningful conversations.” ✨

📅 Saturday 26 September | 11:30am-2:30pm
📍 Royal Botanic Garden Sydney

👉 Register at mdnsw.org.au/register-for-an-event/

26/08/2026

What does best-practice care look like for a child with a neuromuscular condition? 💡

From appointments and therapies to school, social connection and planning for the future, families are often juggling a lot. It can be difficult to know what to prioritise and what support is available along the way.

Join us at NIRD 2026 for an interactive Q&A with experts in paediatric neurology, genetics and lived experience, and discover practical insights, trusted advice and a clearer understanding of the care and support that can help children thrive.

📅 Saturday 29 August
🕐 1:00pm - 4:30pm

👉 Register now at https://ow.ly/wyMg50ZF0EN

25/08/2026

Where people living with FSHD lead the conversation 💙

Join our next FSHD Friends meet-up to chat with people from across NSW who understand the realities of living with FSHD. Share what's worked for you, learn from others, and take away practical ideas that could help with mobility, independence, accessing supports, navigating research and living well day to day.

Whether you're looking for answers, fresh perspectives, or simply a chance to talk with people who truly get it, you're welcome to join us.

📅 Tuesday 22 September | 7-8pm
💻 Online

👉 Register at mdnsw.org.au/register-for-an-event/

21/08/2026

Just two weeks left to apply for the MDNSW Innovator Grants Program 🧪

With up to $100,000 in funding available, the program supports laboratory-based research that advances the understanding, diagnosis and treatment of muscular dystrophy and other neuromuscular conditions.

We're particularly keen to hear from early- and mid-career researchers with innovative ideas that have the potential to improve outcomes for people living with neuromuscular conditions.

📅 Applications close Friday 4 September 2026

👉 View the program guidelines and apply today at https://mdnsw.org.au/innovator-grants-program/

20/08/2026

Ready to experience the thrill of Powerchair Hockey? 🏑

Come along and discover one of Australia's fastest-growing inclusive sports. Learn from experienced players, get on the court yourself, or simply stay for lunch and a chat with fellow attendees.

📅 Saturday 12 September, 12–3pm
📍 Parklands Cafe, Blacktown Disability Sports Centre, Rooty Hill

👉 Register at mdnsw.org.au/register-for-an-event/ you might just find your new favourite sport!

19/08/2026

📢 Summer Break 2027 Update

Due to renovation works at the Sydney Academy of Sport and Recreation in Narrabeen,
Summer Break 2027 will now be held at Point Wolstoncroft Sport and Recreation
Centre.

📅 New dates: Friday 22 – Tuesday 26 January 2027

Only a few spots remain. Register your interest today to join the waiting list.

Summer Break is an inclusive and supportive space where children and teens aged 6–18 living with a neuromuscular condition can make friends, build confidence and enjoy new
experiences. Participants can still look forward to four nights of fun, friendship and activities tailored to a range of interests, personalities and abilities.

👉 Register your interest at https://mdnsw.org.au/upcoming-events/register-for-an-event/

18/08/2026

Ever wished you knew more people who just get it? 💙

Young Adults Connect is your chance to meet others your age who understand – whether you're looking for people to chat with, try new activities, or someone who knows the realities of study, work and independence.

👉 Swipe through and see how many sound like you. If you ticked 3 or more, Young Adults Connect could be for you.

📍 Next in-person catch-up: Saturday 22 August, 12-3pm, West HQ, Rooty Hill
💻 Next online catch-up: Saturday 12 September, 7-8pm

🔗 Learn more and join us at https://mdnsw.org.au/upcoming-events/

17/08/2026

📣 Curious about clinical trials, new therapies and what they could mean for the neuromuscular community?

Join us at NIRD 2026 as we welcome Emma Weatherley (FSHD Global Research Foundation), Dr Sandi Kariyawasam and Dr Michelle Lorentzos (Sydney Children's Hospital) to explore how therapies move from research to reality, what trial participation involves, and the questions everyone should be asking along the way.

📅 Saturday 29 August
🕐 1:00pm - 4:30pm

💡 Gain practical insights, hear different perspectives and have your questions answered by the experts.

Register now at https://events.humanitix.com/neuromuscular-information-and-research-day-nird-2026

14/08/2026

We know there's something special about connecting with people who truly get it, especially when they're part of your local community.

That's why we're bringing Peer Connect Local to you this September!

Share experiences, swap local tips and build meaningful connections close to home.

📅 Canberra: Snapper & Co, Yarralumla, Sat 19 Sept, 12-3pm
📅 Central Coast: Diggers The Entrance, Sat 26 Sep, 12-3pm

🍴 Lunch is on us!

👉 Register at https://mdnsw.org.au/upcoming-events/register-for-an-event/

13/08/2026

Neuromuscular conditions are all the same... right? ❓

Not quite. 💡

There are hundreds of different neuromuscular conditions, and even people with the same diagnosis can have very different symptoms, experiences and support needs.

Understanding these differences helps build a more informed, inclusive and supportive community.

👉 Swipe through to explore some common myths and learn the facts.

🔗 Learn more about neuromuscular conditions and the support available at mdnsw.org.au

Address

North Strathfield, NSW

Website

http://www.mdnsw.org.au/

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