Muscular Dystrophy NSW

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North Strathfield, NSW
Muscular Dystrophy NSW

MDNSW has been serving and supporting people with neuromuscular disorders, including Muscular Dystrophy for over 50 years.

At Muscular Dystrophy NSW, we know you want to live the life you choose. To do that, you need information on your neuromuscular condition, support programs, NDIS services, and a community that gets you. The problem is, it’s hard to find other people who have your condition, and service providers who understand your specific needs. Which leaves you feeling even more alone and unsupported. We believ

e people with neuromuscular conditions deserve specialised support, and a community that understands them. We understand that a new diagnosis, or a change in your condition can make you feel anxious and alone. That’s why for over 60 years, we’ve connected people across NSW living with neuromuscular conditions to the support programs they want, and the community they need.

02/06/2026

Join us for a cosy tea party with crafts this Maker’s Day! 🎨☕

Settle in for a relaxed, creative afternoon where you can decorate cards, create wildflower bouquets and choose your own scents and botanicals in a DIY candle‑making workshop. No experience needed.

🧡 Lunch and all materials provided
🗓️ Friday 19 June | 11am–3pm
📍 PHIVE, Parramatta

👉 RSVP at mdnsw.org.au/register-for-an-event/ or via the link in our bio

Bring your imagination – we’ll take care of the rest. We can’t wait to create something together 💛

29/05/2026

❓Advocacy myths, let’s make them make sense! 💡

There are a lot of myths about advocacy, especially around who it’s for and how it works.

Advocating for yourself doesn’t have to be big, loud or perfect to matter. It often starts small – asking a question or sharing your experience. And over time, those moments build confidence, connection and change.

👉 Swipe to see common myths and what advocacy looks like in real life.

🔗 Want to build confidence and support self-advocacy? Explore our programs at mdnsw.org.au/our-services/

28/05/2026

Growing up shouldn’t mean growing apart ❤️

For many young people living with neuromuscular conditions, adulthood can arrive with less support – right when life begins to expect more.

The people, services and routines they've relied on as children start to fall away.

Young Adults’ Retreat exists for this moment. It's a place to feel understood, connect with others and build confidence alongside people who truly get it.

👉 You can make sure young people aren't left to face this stage of life alone.

🔗 Donate today at https://give.mdnsw.org.au/tax26

26/05/2026

If you’ve ever thought “I’m overwhelmed, alone and don’t know where to start” after a child's diagnosis with a neuromuscular condition, you're not alone. ❤️

Our New Diagnosis Companion is here to help you and your family:

• Find immediate, practical and compassionate support
• Understand disability, health and community services
• Build connections with people who get it 🫂
• Navigate a smoother path from diagnosis to ongoing care and community life

👉 Access it now via the link in our bio or at mdnsw.org.au/service/new-diagnosis-companion/

25/05/2026

"Ask me about myositis" 💬

This Myositis Awareness Month, Andrew is opening up about what life with myositis really looks like.

So today, take a moment to listen, learn, or even ask Andrew your questions!

Because awareness isn’t just about information. It’s about curiosity and listening to lived experience 💙

22/05/2026

🎓 Find your people at Student Life 💛

Join us for a relaxed catch‑up at Macquarie University, where you can meet other students living with a neuromuscular condition who understand what uni life is like.

Whether you’re looking for a study buddy, new friendships or just somewhere to hang out between classes, this is your chance to find your people during your student years.

🗓️ Wednesday 24 June | 12–2pm
📍Macquarie University

👉 RSVP via the link in our bio or at mdnsw.org.au/register-for-an-event/

21/05/2026

This is what access can look like in everyday life.

For many people, technology is what makes independence, connection and participation possible.

On Global Accessibility Awareness Day, we’re taking a moment to think about the role technology plays in everyday life and the ways it can open up (or limit) access.

20/05/2026

We’re celebrating the incredible volunteers who make our camps so special this National Volunteer Week 💙

We asked Lachi, Kyle and Liv what volunteering with MDNSW means to them and what keeps them coming back. Their answers say it all – joy, connection, impact and the kind of moments that really stay with you.

From creating safe, inclusive spaces to jumping headfirst into every activity (and every prank 😄), our camp carers bring energy, care and connection to every moment.

Thank you for showing up, giving back and being such a big part of our community 🙏🏼

18/05/2026

👀 Big Red Roll + Stroll sneak peek 👀

What a day. Our biggest one yet – and our community showed up in the best way.

You fundraised. You brought your people. You created a sea of red.

We’re so grateful.

And it’s not over yet… fundraising stays open until 31 May! The leaderboard is tight – it’s still anyone’s game.

More photos coming soon ❤️

17/05/2026

What a day it was at Big Red Roll + Stroll ❤️

Thank you for showing up, fundraising and being part of a special day.

To keep the momentum going, today only from 3pm, every donation will be TRIPLED – meaning your impact goes 3x further for kids living with neuromuscular conditions.

That’s 3x the support.

3x the opportunities.

3x the moments of confidence, independence and connection at programs like Summer Camp.

If you’ve been thinking about donating, now is the moment. Your gift today can make a powerful difference.

👉 Share your fundraising page now and make it count!

Donations up to $500 will be matched until we reach our additional $6,000 goal

Address

North Strathfield, NSW

Website

http://www.mdnsw.org.au/

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