Shining a Light on Invisible Illness - A SIMNI Partnership Project

05/07/2026

Have you seen our lichen sclerosus guide?

Below I have made it easier to find each section.

•What is LS - https://vimeo.com/1044752540

•Causes, symptoms and signs - https://www.lichensclerosusguide.org.uk/what-is-v***al-ls/

•Anatomy of the v***a - https://vimeo.com/1045687799

•Checking your own v***a - https://vimeo.com/1044751895

•Diagnosis, referrals, check-ups and support - https://www.lichensclerosusguide.org.uk/diagnosis-check-ups/

•Getting a diagnosis - https://www.lichensclerosusguide.org.uk/diagnosis-check-ups/

•Referrals to specialists - https://www.lichensclerosusguide.org.uk/diagnosis-check-ups/

•Who else can help?

•Check-ups - https://www.lichensclerosusguide.org.uk/diagnosis-check-ups/

•Vulval biopsies - https://www.lichensclerosusguide.org.uk/diagnosis-check-ups/

•Treatment of v***al LS - https://www.lichensclerosusguide.org.uk/treatment/

•Topical steroids - https://www.lichensclerosusguide.org.uk/treatment/

•Other treatments - https://www.lichensclerosusguide.org.uk/treatment/

•Everyday life with LS - https://www.lichensclerosusguide.org.uk/everyday-life-with-v***al-ls/

•Looking after your v***a - https://www.lichensclerosusguide.org.uk/everyday-life-with-v***al-ls/

•Relieving pain and discomfort - https://www.lichensclerosusguide.org.uk/everyday-life-with-v***al-ls/

•Sex and v***al LS - https://www.lichensclerosusguide.org.uk/everyday-life-with-v***al-ls/

•Your periods and LS - https://www.lichensclerosusguide.org.uk/everyday-life-with-v***al-ls/

•Clothing and LS - https://www.lichensclerosusguide.org.uk/everyday-life-with-v***al-ls/

•Exercise and LS - https://www.lichensclerosusguide.org.uk/everyday-life-with-v***al-ls/

•Emotional wellbeing - https://www.lichensclerosusguide.org.uk/everyday-life-with-v***al-ls/

•LS in the long term - https://www.lichensclerosusguide.org.uk/the-long-term/

•How LS can progress - https://www.lichensclerosusguide.org.uk/the-long-term/

•Treatment options if LS - https://www.lichensclerosusguide.org.uk/the-long-term/

progresses

•Vulval cancer and VIN - https://www.lichensclerosusguide.org.uk/the-long-term/

•The menopause and LS - https://www.lichensclerosusguide.org.uk/the-long-term/

•Incontinence and LS - https://www.lichensclerosusguide.org.uk/the-long-term/

•Other v***al conditions - https://www.lichensclerosusguide.org.uk/the-long-term/

•Pregnancy and birth - https://www.lichensclerosusguide.org.uk/the-long-term/

•Information for

Carers and partners - https://www.lichensclerosusguide.org.uk/information-for-carers-and-partners/

Healthcare professionals - https://www.lichensclerosusguide.org.uk/information-for-healthcare-professionals/

•Resources - https://www.lichensclerosusguide.org.uk/resources/

•PDF printouts - My Treatment Planhttps://bpb-eu-w2.wpmucdn.com/blogs.bristol.ac.uk/dist/4/1130/files/2025/01/LSGuide_Treatment_Plan_v1.0.pdf

Checklist of symptoms-https://bpb-eu-w2.wpmucdn.com/blogs.bristol.ac.uk/dist/4/1130/files/2025/01/LSGuide-Symptoms-Checklist_v1.0.pdf

Flare checklist -https://bpb-eu-w2.wpmucdn.com/blogs.bristol.ac.uk/dist/4/1130/files/2026/01/LS-Guide-Flare-Checklist-v1.0-.pdf

LS guide survey - https://www.lichensclerosusguide.org.uk/ls-guide-survey/



Please do share the website to other health groups /your GP practice etc

Full guide -➡️ https://www.lichensclerosusguide.org.uk/

20/03/2026

What beautiful message

Hands of the Turtle Nation

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Upon the turtle’s ancient shell,
Four hands in colors softly tell,
Of earth, of kin, of spirits near,
Of bonds unbroken, year by year.

May every palm, from dawn to night,
Give more than take, bring more than fight,
Shape hope from clay, let kindness grow,
And heal the wounds we used to know.

We weave the thread, we mend, we tend,
In every stranger, find a friend,
For under moon, sun’s gentle light,
We are all related, bound in right.

The turtle walks, the feathers sway,
Carrying our prayers along the way,
That hand in hand, through time and tide,
We keep the sacred flame alive.

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20/03/2026

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Our names are songs from ancient skies
Our voices heal like rivers rise.
Our stories echo through the land,
Not one forgotten — not by hand.

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20/03/2026

Today is the International Day of Happiness - let's use our social media to spread the love and positive vibrations around the world.

Namaste

Chris

Celebrate on 20 March. Join the Action for Happiness community and help create a happier and kinder world, together.

21/02/2026

Huge Shout Out to our SIMNI Member Lakeisha Patterson OAM

Pure guts and determination to never give up and to always do her best both in and out of the water are just some of the wonderful traits that we love about her.

Namaste Chris

https://www.facebook.com/share/p/18F9DtZVge/