Emerge ACT

16/08/2026

16/08/2026

Club Tortoise topics for this week and next!

Club Tortoise is our free ongoing pacing education sessions for members living with energy-limiting conditions. To find out more or join contact us at [email protected]

16/08/2026

07/08/2026

Today, 8 August, is Severe ME Day, a day to recognise the experiences of people living with severe and very severe ME/CFS, many of whom spend their lives confined to bed, in darkened rooms, and largely out of sight.

Too often, people with severe ME/CFS are missing from research, healthcare planning and policy. What isn't counted is too easily overlooked.

Our survey, "Living with ME/CFS and long COVID in Australia: A national burden of disease survey", is designed to include the voices of people across a full spectrum of illness severity - including those living with severe ME/CFS.

By sharing your experience, you can help build a clearer picture of our community. Every response strengthens the evidence needed to advocate for better healthcare, support services and research that reflects the reality of living with ME/CFS.

If you are unable to complete the survey yourself, a carer can assist you or can complete the survey on your behalf.

* The survey is anonymous.
* Complete the survey at your own pace.
* Save your progress and return whenever you're able.
* A carer or support person can assist you to complete the survey.
* Responses should reflect the experiences of the person living with ME/CFS or long COVID.

Photo credit: Lea Aring and German Association for ME/CFS

🔗 Take the survey here: https://zurl.co/6zYp3

Every response helps ensure people with severe ME/CFS are seen, heard and counted.

21/07/2026

We've been working hard on some educational materials for allied health to understand the challenges and intricacies of seeing clients with ME/CFS and long COVID. Here is a video recording for physiotherapists by our peer worker, Ronja. Feel free to share with your practitioner - physiotherapists in Australia should be able to record this as CPD points.

We welcome referrals for our self-management courses and other serv...

20/07/2026

One week to go until our next Zoom self-help course starts. Get in touch ASAP to reserve your spot!

[email protected] or 02 6251 2055

13/07/2026

Our new 23-week block of Club Tortoise topics is starting this week! Members can drop in from week to week for specific topics of interest and ongoing support for their pacing and self-management.

07/07/2026

🎉 Breaking news for the ME/CFS community! 🎉

For the first time since 2003, ME/CFS will be officially included as a separate condition in the Australian Burden of Disease Study (ABDS) in December 2026 - an historic milestone that recognises the impact of this condition on over 250,000 Australians. 🇦🇺💙

This didn't happen by accident. ME/CFS was dropped from this data back in 2011. Getting it back took several years of Emerge Australia working directly with the AIHW, backed by evidence on just how much this condition affects the people living with it.

Being counted matters. It means the data can no longer be ignored, and it's the foundation for the policy attention, funding and research investment this community has been waiting decades for.

Together, we're shaping a future where ME/CFS is seen, heard, and prioritised.

Join us in celebrating this groundbreaking achievement as we continue to raise awareness with the campaign! ✊✨

Read our full press release: https://zurl.co/LaHJa

💙🙌

05/07/2026

🌿 This NAIDOC Week, we celebrate the rich history, culture, and achievements of Aboriginal and Torres Strait Islander peoples. At Emerge Australia, we come together in solidarity with Indigenous communities and recognise their invaluable contributions to our nation. Let’s honour their stories, embrace their wisdom, and commit to a future of respect and reconciliation. 💚🖤❤️

Read more about our commitment here: https://zurl.co/Rad50

29/06/2026

Places are filling up, so get in touch if you would like to secure a spot in our next facilitated self help course.