Emerge ACT

15/06/2026

Arthritis ACT is running an 8 week mindfulness for chronic pain conditions course from 1 July. Contact [email protected] or 02 6251 2055 for more information or to book.

11/06/2026

11/06/2026

We are opening enrolments for our next facilitated self help course, starting end of July.

Some feedback from other participants:

"Very grateful to have been able to have done this course - it broke down pacing into something more accessible with built in accountability, and it allowed me to both share and listen to/connect with others in similar situations."

"Really helpful and has improved my quality of life and mental health"

"I felt like the others in the course wanted to listen to what I had to say and that doesn't seem to happen often these days which was nice."

If you're interested in enrolling or want more information, contact us at [email protected]

09/06/2026

On today and every Wednesday! Our members' Zoom support group. Contact us for information or to join.

04/06/2026

Our peer worker, Ronja, has been attending the Australian POTS Foundation's conference, Converge, virtually today. Such amazing, passionate researchers and clinicians working to improve our understanding and support for those living with invisible and complex conditions like POTS and ME/CFS! We hope to share information from these presentations with members and continue to advocate for more work in this space.

Our incredible opening address at was delivered by APF Ambassador Emma-Louise Wilson.

She didn't open with statistics.

She opened with her life. She shared her lived experience.

She carried years of unexplained fatigue through university, when she was supposed to be at her most invincible.

Emma-Louise flew to London to build a career, and at 27 received a solar urticaria diagnosis - her first encounter with the words "mast cells," though she didn't yet know how central they would become.

Doctors handed her a fibromyalgia diagnosis like it was an answer. It never felt like one to Emma-Louise Wilson.

And through all of it, she kept showing up - as an actor, as a stunt performer - fighting her own body to do the work she loved.

Emma-Louise described fatigue that has nothing in common with tiredness.

Not the kind that sleep fixes. A full-body experience, she said, like moving through custard. She talked about carrying a quiet, constant dread - not knowing if she could show up for her job.

Spending four days recovering for every three days of work. Calculating everything.

She found pacing. And she learned - the hard, humbling way - that pushing through was never a strategy, no matter how much she needed it to be.

And she talked about what it took to finally connect the dots. The tachycardia she'd been chalking up to perimenopause. The symptoms that, taken one by one, pointed nowhere - until one day, they did.

This is what POTS looks like in real life. Not a single dramatic moment. Not a clean before and after. A long, slow accumulation across decades - each symptom explained away, each one managed in isolation - while the condition underneath stayed invisible, unnamed, unacknowledged.

Emma-Louise's story is exactly why this community exists. And why events like CONVERGE matter so deeply.

Thank you, Emma-Louise, for opening our conference with such extraordinary honesty and generosity.

You gave the room something statistics never could. 💙

03/06/2026

📅 2026 Health Professional Webinar Series: Assessing function in ME/CFS

When: Thursday the 25 June, 6:30 – 8pm AEST
Where: Live online. Register here https://zurl.co/UfYO0
What: Webinar and question time

Patients with ME/CFS may look “fine” in your consult, but what happens after they leave?

How do you document functional capacity in ME/CFS when it fluctuates and may not be immediately obvious?

Join us as Senior Occupational Therapist Melanie Weeks outlines how to assess and document fluctuating functional capacity in ME/CFS. Learn which assessment tools best capture functional impact in ME/CFS and practical tips to support NDIS, DSP, and service access, even with limited time and resources.

Learning outcomes:

By the end of this session you will be able to:

*Describe the core features of ME/CFS, including post‑exertional malaise (PEM), severity levels, and their functional consequences
*Assess and document functional capacity in a way that supports access to services and income support
*Adapt modes of communication to support patients experiencing cognitive dysfunction

👉 Register now to strengthen your functional assessments and clinical documentation
📌 Highly relevant for GPs, OTs and physiotherapists needing to understand and document functional capacity in ME/CFS

RACGP CPD approval pending for 1.5 Educational Activity Hours.

A recording will be available after the event on our LMS "https://zurl.co/NEpTs"

Please note: These sessions are for Health Professionals only.

This webinar has been supported by an unrestricted educational grant from Moderna.

28/05/2026

What are your pacing tips? Do you take scheduled rests too?

28/05/2026

Young members (teens and early twenties) can join our Lounging Lizards private Whatsapp group to connect with others with ME/CFS, Long COVID or fibromyalgia. To find out more, contact [email protected].

27/05/2026

Learn how to perform the 10-Minute NASA Lean Test in this instructi...

27/05/2026

This National Reconciliation Week, we reflect on our shared history and our shared future.

Reconciliation is more than a word, it’s a commitment to listening, learning, and walking together with Aboriginal and Torres Strait Islander peoples.

Let’s continue building respectful relationships, creating opportunities for truth-telling, and working toward a more just and united Australia.

Emerge Australia is dedicated to listening, learning, and acting in partnership with Aboriginal and Torres Strait Islander communities. We invite anyone interested in collaborating or sharing their story to reach out to us. Together, we can create a future where everyone affected by ME/CFS and long COVID receives the care and support they deserve.

More information: https://zurl.co/OD3LT