Fergie's Hope

16/01/2026

Thank you to Mum and Kim for helping at our final stall of 2025 when $660 was raised for the MND and ME Foundation. Amazing support through purchases and direct donations. We know the funds will go where they're needed most. Here's a post from a friend about it. Thank you LD!

20/11/2025

This segment explains why MND needs to be a notifiable disease! Thanks Jane & Damian Damians journey and fight with MND
https://www.facebook.com/share/v/1FDFjjwMee/

17/11/2025

MND Can't Wait!

MND is growing and the system still can’t keep up.

More than 2,600 Australians live with MND at any given time, and diagnoses are projected to rise nearly 14% by 2029.

Most are over 65 and are automatically excluded from the NDIS.

The numbers in the Every Moment Matters report are sobering:

▪ 13 months: average time from first symptom to diagnosis
▪ $133,000: average household loss due to MND
▪ 5.3 million hours: unpaid care delivered by families each year
▪ $5.02 billion: national cost of MND in just one year
▪ 0 national data platforms to track who’s being diagnosed, what care they’re receiving, or how we’re measuring outcomes

We can’t fix what we don’t see and right now, we’re flying blind in a disease where time is running out from day one.

📄 Read the full report now on the MND Australia website: mndaustralia.org.au/everymomentmatters

📣 And join us this Wednesday 19 November at 1:00pm AEDT for the Every Moment Matters Webinar, where we’ll unpack the findings, hear from people living with MND, and discuss what needs to happen next in care, science, and policy.

📍 Register here: https://us06web.zoom.us/webinar/register/WN_CF3p2FieSHyM4kil98v5UQ

MND Can’t Wait — and neither should the system

15/11/2025

Just got our tickets!

The MND and Me Foundation Limited - MND and Me Christmas Raffle 2025. Drawn on: Tuesday, 16 December 2025. Sponsors:

15/11/2025

We're looking forward to learning more at this event and will have our Fergie’s Hope stall to raise funds for the MND and ME Foundation. We'll have some Christmas themed items along with the cutest softies (crocheted hearts and animals), hanging towels, semi-precious gemstone bracelets and more. We hope to see you there 💙🧡💙

Have you registered?? Our 2025 MND Research Spotlight is next Wednesday!! 🔬

Join us to hear from incredible MND and Me funded researchers as they share their 2025 findings and what’s next in the mission to find effective treatments and a cure for MND.

Enjoy afternoon tea, connect with researchers, take part in a panel discussion and Q&A, and be there for the exciting announcement of our 2026 Research Grant recipients!

Where: Brisbane Broncos Leagues Club, Red Hill
When: Wednesday 19 November | 3:30 – 6:00pm
Cost: Free

Don’t miss this inspiring afternoon – register now to secure your spot!
https://secure.mndandme.com.au/events/115/mnd-research-spotlight-2025

13/11/2025

Great opportunity! Professor Henderson leads the MND clinic that Dad attended. Dad knew there was no hope for him but he still participated in the hope he was helping future generations. Our family strongly advocates for a national registry. Please join this online event if you want to learn more. Let's not take a whole generation to find a cure and better treatments.

“In a disease this fast, we can’t afford to be this slow.”

Neurologist A/Prof Robert Henderson has spent decades treating people with MND and helping us understand the science behind it.

On Wednesday 19 November, he joins MND Australia’s national webinar to speak about the key clinical and research findings from the Every Moment Matters report and what they mean for the future of care.

Robert will explore:

▪ Why MND still takes an average of 13 months to diagnose — and how we can change that
▪ What new treatments like Edaravone and Tofersen mean for people today
▪ Why multidisciplinary care matters — and how we make it standard
▪ What role a national MND registry could play in saving lives

📆 19 November | 1–2pm AEDT | Zoom

📩 Register:
https://us06web.zoom.us/webinar/register/WN_CF3p2FieSHyM4kil98v5UQ

Whether you’re a clinician, carer, researcher or policy advisor, this is your chance to hear directly from one of Australia’s most experienced MND specialists.

MND Can’t Wait — and neither can the science.

21/10/2025

An incredible opportunity to hear what researchers and the MND and ME Foundation are doing for our community 🧡💙🧡

You’re invited to our 2025 MND Research Spotlight! 🔬

Join us to hear from incredible MND and Me funded researchers as they share their 2025 findings and what’s next in the mission to find effective treatments and a cure for MND.

Enjoy afternoon tea, connect with researchers, take part in a panel discussion and Q&A, and be there for the exciting announcement of our 2026 Research Grant recipients!

Where: Brisbane Broncos Leagues Club, Red Hill
When: Wednesday 19 November | 3:30 – 6:00pm
Cost: Free

Don’t miss this inspiring afternoon – register now to secure your spot!
https://secure.mndandme.com.au/events/115/mnd-research-spotlight-2025

29/08/2025

Ohhhh I wonder what's in store???

We’ve been mixing, stirring, and baking up something new… 🧁 Coming very soon! 💙

15/08/2025

All set up ... kinda ... ready to go! Had to leave some things out today due to less space but we've got a stash under the table ready to restock!

15/08/2025

Oh my goodness, another legend supporting the MND and ME Foundation! This time Linda from our Fitzgibbon craft group, who made two hats for our next market stall. Thank you Linda 🧡💙🧡