Shave for Xave

20/06/2026

Today, our family’s story was featured in The Australian , highlighting the fight Xavier has faced and the reality that many Australian families endure when trying to access life-saving treatments.

We want to say a heartfelt thank you to Rare Cancers Australia for always standing beside us, advocating for families like ours, and helping share Xavier’s story to raise awareness and support.

Your unwavering dedication has made such a difference in our journey.

A huge thank you also to The Australian and the journalists who took the time to listen, learn, and tell Xavier’s story with such care.

Bringing attention to the challenges families face accessing treatment is so important, and we are incredibly grateful for the opportunity to be heard.

Xavier’s journey has never been easy, but the support of our community, organisations like Rare Cancers Australia, and those willing to shine a light on these issues continues to give us hope.

Thank you to everyone who has supported, shared, donated, and stood with us.

Every bit of support helps us continue fighting for Xave. ❤️



https://www.theaustralian.com.au/health/medical/theyre-on-the-pbs-but-xavier-still-cant-access-these-cancer-drugs/news-story/bebf8b74fdc07c10c0a3cc65f8450778?giftid=tG1goXWfub

15/06/2026

A little update on our brave boy, Xave 💙

We had a really positive phone call with the team in the US last week.

The exciting news is that Xave’s latest genetics testing has identified some targetable treatment options, giving us more pathways to explore moving forward.

To access these medications, we'll need to head back to the US, as they're not currently available to us here in Australia even though one is on the pharmacy shelf 😉

We're looking at making the next trip during the school holidays which is great as Xave has missed out on too much school and is determined to get his pen license!!

The other great news is that Xave’s blood work is looking amazing, and he is absolutely full of energy. Seeing him running around, laughing, and being his usual cheeky self is something we never take for granted.
He played the BEST footy game on Friday night really getting in there with so much for confidence 💛

Next week we have scans coming up, which, as always, brings a mix of hope, nerves, and anticipation.
Scan time never gets easier, but we're staying positive and taking things one day at a time.

Thank you to everyone who continues to support, encourage, and walk alongside us on this journey. We are so grateful for every message, prayer, and kind thought sent our way. ❤️

Please keep Xave in your thoughts as we head into scan week next week 👌

12/06/2026

Would anyone I know happen to have a Xavier Duursma football card laying around that Xavier could have?? 🥹💛🙏

11/06/2026

Today marks another huge milestone for our brave boy, Xave.

He has officially completed
17 out of 17 radiation treatments🎉
Day 21 of 21 of chemo

After everything he's endured to get to this point, these are numbers we are incredibly grateful to be celebrating.

These past few weeks have been relentless.

Our days have started before sunrise
hyperbaric treatment at 6am
Radiation
followed by Oncotherm therapy with our naturopath before heading off to school

It's been physically and emotionally exhausting, but Xave has faced every single day with courage and determination.

Now we move into a 7 day break from chemo before we learn what comes next.

Tomorrow morning at 7am we have our meeting with the team in the US who will review everything and guide us on the next steps in Xave's treatment journey.

As always, we're feeling a mix of relief, hope, nerves, and gratitude.
Every completed treatment is a step forward, and we couldn't have made it this far without the love, support, prayers, and encouragement from our incredible village.

For today, we're celebrating:

✔️ 17/17 Radiation completed
✔️ 21/21 Days of chemo completed
✔️ One very brave little boy who continues to inspire us every single day

Tomorrow brings answers, and hopefully the next chapter in getting Xave where he needs to be.

One day at a time. One treatment at a time. One victory at a time. 💙

10/06/2026

🩷🤍🩶

Pies/pasties/sausage rolls available this Wednesday at training!!

Let us feed you and take the effort out of dinner!!

Funds raised support Shave for Xave

Pre order now 👇

https://www.trybooking.com/DMSBB

09/06/2026

🤎💛🤎💛🤎💛

07/06/2026

Today I read a post from Professor Richard Scolyer AO - My Uncertain Path that stopped me in my tracks.

I had the privilege of meeting Richard at the Cancer Summit at Parliament House, where I was invited to share Xave’s story. As a parent navigating the relentless world of childhood cancer, you meet many incredible people along the way, but Richard was someone truly special.

When I met him, he wrapped me in a hug. It was such a simple gesture, but one I’ll never forget.
I spend so much of my life trying to be strong for Xavier, for my family, and for everyone around us.
But in that moment, that hug got me. The tears came, and for a second I let my guard down.

Richard had a way of making people feel seen. Despite everything he was facing, he radiated kindness, humility, courage and hope.

He listened. He cared. He understood.

Reading his words today, my heart breaks for his beautiful family, friends, colleagues and the countless people whose lives he has touched.

Yet even in his farewell, he continues to teach us. To choose love. To cherish relationships. To keep pushing forward with purpose and compassion.

Richard, thank you for the work you have done, the lives you have changed, and the hope you have given to so many families facing cancer. Thank you for that hug when I needed it most.

Australia is better because of you, and your legacy will live on far beyond these words.

❤️💔

06/06/2026

🖤 MERCH CLEARANCE – EVERYTHING MUST GO! 🖤

We still have merch available and we want it all gone! Every sale supports Xavier’s fight. 💛

🧥 Adult Hoodies was $75 now $45
Sizes: XS, S, XL, 2XL, 3XL, 5XL

👕 Adult T-Shirts was $75 now $20
Sizes: SM, MED, XL, 2XL, 3XL, 4XL, 5XL

🧥 Kids Hoodies was $35 now $15
Sizes: 6, 8, 10, 12

👕 Kids T-Shirts was $35 now $10
Sizes: 4, 6, 8, 10, 12, 16

🍺 Stubbie Holders was $15 now $10
22 available!

📩 Comment below or DM us to grab yours before they’re gone!

Every single item sold means the world to our family. Thank you for your continued love and support. 💛🖤

05/06/2026

Last Friday at Xave’s review, his red blood cell count was 104.

His doctor explained that if it dropped to 100 or below, he would need a blood transfusion.

This week, we increased his hyperbaric sessions and he also restarted Oncotherm treatment.

I’m so grateful to share that today his red blood cell count has risen to 108, meaning no blood transfusion is needed right now. 🙏

I truly believe that supporting Xave with an integrative approach alongside his medical treatment is making a real difference. Every small win is worth celebrating. ❤️

Day 17/21 chemo
Day 13/17 radiation